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News & Topics in Our Community

TUNE IN: January 21st - Disability Organizing in 2020

January 14, 2020

Organizers Forum: Disability Organizing in 2020

Tuesday, January 21, 2020
10:00-11:00 am Pacific

RSVP
Video link: https://zoom.us/j/158367875
Call-in: 1-929-205-6099, Meeting ID 158 367 875#
or find your local number: https://zoom.us/u/aedVwZm7zQ


Hear some powerful disability leaders share their visions for 2020. How is community organizing in disability communities going? How strong are we? What can we do differently? How are we addressing racism and intersectionality? What challenges and opportunities do we face this coming year? Please join to share your own and engage in dialogue! 

Speakers:



  • Maria Town, President and CEO, American Association of People with Disabilities (AAPD)

  • Sarah Jama, Co-Founder, Disability Justice Network of Ontario (DJNO)

  • Marcie Roth, Executive Director and CEO, World Institute on Disability

  • Alice Wong, Founder and Project Coordinator, Disability Visibility Project (by pre-recorded video)


We'll be on video! Click the Zoom link above and turn on your webcam, or you can just call in from your phone. Please test your webcam and speakers before the call. 
Accommodations & CART: 

The call will have real-time captioning (CART) at: https://2020archive.1capapp.com/event/forum/. No username and password needed, when you log on at the time of the call.

To ask questions via CART: Sign-in to the chat function on the right side of the transcript and type your question. One of the call facilitators will read questions posted there. You can also type questions through the Zoom video portal.

Because we want to maximize the generously donated CART services, we will begin the call promptly at 1:00 p.m. and end the call promptly at 2:00 p.m. Eastern.

Thank you to the National Disability Leadership Alliance for sponsoring the captioning of this call. Thank you to Senior and Disability Action for providing the video conference service. If you need additional accommodations to participate in the call, please let us know as soon as possible. 

Mark your calendars! 

The Organizer's Forum has a call on the 3rd Tuesday of each month, 10AM-11AM PST. 

Organizers Forum Listserv
Organizers Forum Facebook

Background: 
The Organizing Workgroup of the National Disability Leadership Alliance hosts these calls the third Tuesday of every month as a resource for disability organizers, in an effort toward building the organizing capacity of the disability community across the country. They generally follow the format of a Welcome followed by 2-3 experts in a given area speaking for a few minutes on their experiences, advice and challenges. The calls include a 20-30 minute question and answer period. 

Please share widely! 


 

Read More at Article Source
#DisabilityCounts2020 Twitter Chat: All About the 2020 Census

January 13, 2020

Digital art of 6 people of different ages, races and disabilities, service dog. Text: How an Accurate Census Count Benefits Disabled People. Join us February 5, 2020 at 3PM. A #DOnetwork Twitter Chat. Logos: Disability Organizing Network, DREDF, California Census, and Disability Visibility, Twitter bird.


#DisabilityCounts2020 Twitter Chat:
How an Accurate Census Count Benefits Disabled People

February 5, 2020
3-4 PM Pacific

In partnership with the Disability Organizing (DO) Network, the Disability Visibility Project will host a Twitter chat on the 2020 Census and what it means for the disability community with co-host Disability Rights Education and Defense Fund (DREDF). While all participants are welcome to join us, we will focus on the Census in California and how the Disability community can benefit from being counted in the U.S. Census. We look forward to learning about your interest and advocacy with the Census!  

To learn more about the Twitter Chat (including how to participate, please visit: https://disabilityvisibilityproject.com/2020/01/11/2-5-donetwork-twitter-chat-on-census-2020/)

For more on #DisabilityCounts2020, please visit: https://disabilitycounts2020.org/

Read More at Article Source
Public Webinar: Rules of the Game for 501(c)(3)s: Elections 4.7

January 10, 2020

Elections are important opportunities to educate and engage voters and the community at large. Although 501(c)(3) organizations cannot support or oppose candidates for public office, there are many activities they can participate in during election years.

Here’s the upcoming public webinar in English about nonprofit activities related to elections:
Tuesday, April 7, 2020 | 2:00 PM EDT
Public Webinar: Rules of the Game for 501(c)(3)s: Elections 4.7
 
En 2020, muchas organizaciones trabajarán en alentar la participación de los votantes y realizar promoción y defensa de causas en asuntos que son relevantes en las elecciones. Las organizaciones 501(c)(3) deben de tener cuidado que nunca apoyen o se opongan a candidatos para cargos públicos, pero no tienen que quedarse callados por causa de las elecciones.
Here’s the information for the webinar in Spanish:
Tuesday, July 28, 2020 | 2:00 PM EDT
Seminaro Virtuale: Reglas de Elecciones para 501c3

There are additional public workshops we offer throughout the year, and this page offers more information.

Additional resources:


  1. Election Checklist for 501(c)(3) Public Charities (factsheet)

  2. Commenting on Candidates and Campaigns: How 501(c)(3)s Can Respond During an Election Year (factsheet)

  3. Praising and Criticizing Incumbents: How 501(c)(3)s Can Hold Elected Officials Accountable for Official Actions (factsheet)

  4. Election Checklist for 501(c)(3) Public Charities: Ensuring Election Year Advocacy Efforts Remain Nonpartisan (blogpost)

  5. Nonpartisan Candidate Education: How 501(c)(3)s Can Talk to Candidates During an Election Year (blogpost)

  6. The Rules of the Game: A Guide to Election-Related Activities for 501(c)(3) Organizations This is an in-depth resource that contains extensive details. It’s a deep dive, so you’ll probably want to read the other fact sheets first.


From: Sara Matlin
Senior Bilingual Counsel /Abogada Bilingüe Principal
Bolder Advocacy Initiative
Alliance for Justice /La Alianza por la Justicia
Free technical assistance for nonprofit advocacy organizations at 866-NP-LOBBY (866-675-6229) or advocacy@afj.org.
Asistencia técnica gratuita para organizaciones sin fines de lucro dedicadas a la defensa y promoción de causas al 415-528-3540 o a sara@afj.org.

Read More at Article Source
Today at 2-4 PM in Chico - 4th IHSS "Listening Session"

January 7, 2020

WHEN: JANUARY 7, 2020 - TUESDAY AFTERNOON  ***TODAY***
TIME:  2:00 PM - 4:00 PM (Pacific Time)
LOCATION: NORTHERN CALIFORNIA (Fourth in Series of Five) [note NEW location]
  Butte Community Employment Center – Room 120 (Condor Room - downstairs)
  765 East Avenue
  Chico, CA 95926
DIRECTIONS BY CAR - PARKING AND TRANSPORTATION INFORMATION: According to the California Department of Social Services (CDSS), the Butte Community Employment Center is located next to Sportsman’s Warehouse. It is accessible via Butte Regional Transit lines 2 and 3.
CALL-IN from wherever: 888-324-3619
CALL-IN PASSCODE: 5400081


NEW AGENDA - PRESENTATION: "In-Home Supportive Services (IHSS) Overview & Sustainability Listening Sessions January 2020, presented by Debbi Thomson, Deputy Director, Adult Programs Division California Department of Social Services - PDF Document (20 pages) - from the department webpage on the Master Plan for Aging IHSS Listening Sessions (slightly updated version of presentation given at the previous three IHSS "Listening Sessions"): 
https://www.cdss.ca.gov/Portals/9/Adult-Programs/MPA/Jan2020_IHSS_ListeningSessionsPresentation.pdf

OTHER MEETING INFORMATION - webpage on the California Department of Social Services website on the Master Plan for Aging with a focus on the IHSS Program (lists out IHSS Listening Session meeting information and any related documents, and also links to Master Plan for Aging information): https://www.cdss.ca.gov/inforesources/cdss-programs/ihss/mpaihss

REASONABLE ACCOMMODATIONS: According to the California Department of Social Services, for questions about accessibility or to request reasonable accommodations for either session (January 7th or January 10th), please email or call with reasonable accommodation request no later than January 3, 2020 (Friday) and indicate which session you will attend.  
    EMAIL (for Reasonable Accommodations):  MPAIHSS@dss.ca.gov
    PHONE (for Reasonable Accommodations): Jeffrey Berndt (California Department of Social Services) at (916) 651-5362

PURPOSE OF "LISTENING SESSIONS" ON IHSS:  
  The announcement of the "Listening Session" by the California Department of Social Services said that "IHSS is one of the four main focuses of the Long-Term Services and Supports Subcommittee. These listening sessions will give IHSS recipients, providers and other stakeholders an opportunity to discuss sustainability strategies and IHSS program enhancements. These ideas will then be shared with the LTSS [Long Term Services and Supports] subcommittee."

SUBMIT (VIA EMAIL) COMMENTS & RECOMMENDATIONS REGARDING MASTER PLAN FOR AGING (INCLUDING THOSE RELATED TO IHSS) [Note: email address is to the California Department of Aging (under the California Health and Human Services agency) that is facilitating the work of the two Master Plan for Aging subcommittees: EngAGE@aging.ca.gov

Read More at Article Source
Start 2020 off Right!

December 31, 2019

Start 2020 Off Right!

closeup photo of a US flag and California flag. Text from post. Disability Organizing DOnetwork logo



Do you work at a non profit that advocates for change?
Do you collaborate with non profits and want to understand the lobbying rules that they have to follow?

 

Register now for our FREE WEBINARS
Amplify Your Power: Advocacy & Lobbying 
with Bolder Advocacy Initiative 
January 7, 2020 - Federal Lobbying Rules 
January 14, 2020 - California Lobbying Rules 
10AM-11:30AM PST 

 

[: blue filtered photo of a polling place with US flags. Disability Organizing logo. Text from post]


Do you plan on voting in the California Primary Election on March 3, 2020? Make sure you have all the knowledge needed to be an informed voter! 
 
Register now for the FREE webinar 
What you need to know for Election Cycle 2020 with 
Disability Rights California 
Wednesday, January 8, 2020 
10AM-11:30AM PST



#DOnetwork 
#DisabilityVoteCA

 

Read More at Article Source
FREE WEBINAR: What You Need To Know This 2020 Election

December 12, 2019

Image description: blue filtered photo of a polling place with US flags. Disability Organizing logo. Text from below.] -
 


Did you know that CA’s PRIMARY election is just around the corner?
(It’s in March!)


The Disability Community is one of the most untapped, yet *powerful* voting bloc in the state and country. It’s time to harness our power in this election year.

Join Disability Organizing Network and Disability Rights California to get all the relevant info you need to vote in California’s Primary Election. We will cover: new, accessible voting machine information, primary voting rules and more!

 
All are welcome and encouraged to join:

Wednesday, January 8, 2020
10AM-11:30AM PST

REGISTER HERE 

Share on Facebook 


 

The webinar will have live captioning in English. For any other reasonable accommodations, please let us know by Friday, January 3, 2020 by 3PM PST by emailing info@disabilityorganizing.net or contacting 1-800-390-2699. You also can let us know when you register: https://disabilityorganizing.net/training-events/
 
#DisabilityVoteCA


 

Read More at Article Source
Elected for Inclusion - January 13, 2020

December 12, 2019

text: ELECTED FOR INCLUSION: A PRESIDENTIAL FORUM ON DISABILITY ISSUES, AT&T CONVENTION CENTER AUSTIN, TX JANUARY 13, 3030 10AM-2PM Check out AAPD's website for more information and tickets for just $10 - AAPD & REV UP Logos


The American Association of People with Disabilities (AAPD) and REV UP Texas will host Elected for Inclusion, a national nonpartisan Presidential candidate forum on disability issues. Elected for Inclusion will take place on January 13, 2020 at the AT&T Hotel and Convention Center in Austin, Texas. The forum will give major party Presidential candidates an opportunity to address questions and discuss policy decisions that affect approximately 23% of the American electorate.

Below are a few ways to get involved with the forum and promoting disability rights in the upcoming elections.



  • Spread the word about the forum and purchase tickets for $10. See the invitation here.

  • If you are unable to attend the forum in person then host a watch party and tune in through our livestream. Check out our website for more information about watch party options. 

  • Become an official sponsor for the forum! Email Maria Town (mmtown@aapd.com) for more information about sponsorship opportunities. 

  • Post on social media about the importance of the disability vote, and tag the candidates in posts about attending the forum. Please use hashtags: #REVUP #Elected4Inclusion #CripTheVote. 


Read More at Article Source
Advocacy & Lobbying FREE Webinar Series

December 11, 2019

Image description: closeup photo of a US flag and California flag and text: January 7, 2020 Webinar: Federal Lobbying Rules for Nonprofits  January 14, 2020 Webinar: California Lobbying Disclosure Rules  #NothingAboutUsWithoutUs







Disability Organizing Network is excited to announce our next series of FREE webinars on advocacy and lobbying. The webinars will be presented in partnership with Alliance for Justice, Bolder Advocacy Initiative. Bolder Advocacy equips nonprofits with the knowledge they need to be confident and powerful advocates. Bolder Advocacy’s attorney-trainers make advocacy easier for nonprofit leaders who want to fight for community change, and we’re experts in offering training, technical assistance, and resources for nonprofits to become better advocates!

 

Amplify Your Power: Federal Lobbying Rules for Nonprofits  

January 7, 2020 from 10AM-11:30AM PST  

Amplify Your Power: CA Lobbying Disclosure Rules  

January 14, 2020 from 10AM-11:30AM PST

REGISTER HERE

Join & Share on Facebook


 
The webinars will have live captioning in English. For any other reasonable accommodations for the January 7th Webinar, please let us know by December 27th at 5PM PST. For any reasonable accommodations for January 14th Webinar, please let us know by January 7th by 5PM PST. To contact us please email info@disabilityorganizing.net or contact1-800-390-2699. 

 
Please note: These webinars are a follow up from our first lobbying and advocacy webinar: The National Independent Living Perspective. Catch up here!

Read More at Article Source
IHSS Listening Sessions Dates/Times Released

November 20, 2019

The California Department of Social Services, in collaboration with the Master Plan for Aging Long-Term Services and Supports Subcommittee, is hosting public forums on the sustainability and future of the In-Home Supportive Services program. 
 
UPCOMING IHSS LISTENING SESSIONS


  • Berkeley: Friday, November 22, 2 p.m. - 4p.m., Ed Roberts Campus, 3075 Adeline St, Berkeley, CA 94703

  • Modesto: Tuesday, December 3, 2 p.m. - 4p.m., Stanislaus Veterans Center, In Home Supportive Services/Public Authority, 3500 Coffee Rd., Suite 15, Conference Room 114/115, Modesto, CA 95355

  • Chico: Tuesday, January 7, 2 p.m. - 4 p.m., Butte County Library – Chico Branch, 1108 Sherman Avenue, Chico, CA 95926

  • Los Angeles: Friday, January 10, 2 p.m. - 4 p.m., Junipero Serra State Building, 320 West 4th Street, Los Angeles, CA 90013


Additional information on the Master Plan for Aging can be found on the Together We EngAGE website.  If you would like to be added to the Master Plan for Aging stakeholder distribution list, please submit your request here.
 
#LTSS4All 

Read More at Article Source
National Organizers Forum: Census 2020 Call 11/19/2019

November 18, 2019

National Organizers Forum: Census Outreach Inside & Outside Disability Communities

Tuesday, November 19, 2019
10:00-11:00 am Pacific
RSVP
Video link:  https://zoom.us/j/158367875
Call-in: 1-929-205-6099, Meeting ID 158 367 875#
Or find your local number: https://zoom.us/u/aedVwZm7zQ


We must make sure that people with disabilities are counted in the 2020 census, to ensure recognition of our diverse communities in every way -- program funding, voting, city planning, education, employment, and more. Join the call to learn about and discuss how we can make sure disabled people participate in the census, despite the barriers. We'll hear from people who have planned census outreach targeting people with disabilities, and we'll learn from people doing census outreach in other marginalized communities. Join us!  

Speakers:
* Vanessa Cuellar and Allie Cannington, California Foundation for Independent Living Centers
* Erika Hudson, National Disability Rights Network
* Others to be announced.

We'll be on video! Click the Zoom link above and turn on your webcam, or you can just call in from your phone. Please test your webcam and speakers before the call.

Accommodations & CART: 
The call will have real-time captioning (CART) at: https://2020archive.1capapp.com/event/forum/. No username and password needed, when you log on at the time of the call.
To ask questions via CART: Sign-in to the chat function on the right side of the transcript and type your question. One of the call facilitators will read questions posted there. You can also type questions through the Zoom video portal.
Because we want to maximize the generously donated CART services, we will begin the call promptly at 1:00 p.m. and end the call promptly at 2:00 p.m. Eastern. Thank you to the National Disability Leadership Alliance for sponsoring the captioning of this call. Thank you to Senior and Disability Action for providing the video conference service. If you need additional accommodations to participate in the call, please let us know as soon as possible. 

Mark your calendars!
The Organizer's Forum has a call on the 3rd Tuesday of each month, 1:00-2:00 p.m. Eastern. 

Organizers Forum Listserv
Organizers Forum Facebook

Background: 
The Organizing Workgroup of the National Disability Leadership Alliance hosts these calls the third Tuesday of every month as a resource for disability organizers, in an effort toward building the organizing capacity of the disability community across the country. They generally follow the format of a Welcome followed by 2-3 experts in a given area speaking for a few minutes on their experiences, advice and challenges. The calls include a 20-30 minute question and answer period. 

Please share widely! 

 

Read More at Article Source
*Postponed* Webinar Part 2: Advocacy & Lobbying in California

November 5, 2019

*NOTE* Due to a change in presenters - we are needing to postpone. The new dates will be released soon!




Please join the Disability Organizing Network for Webinar Part 2: Advocacy & Lobbying in California. The webinar will be presented in partnership with the Alliance for Justice Bolder Advocacy's California team. The webinar will cover California specific law as it pertains to lobbying and advocacy.
Date: To Be Determined 
Time: To Be Determined 



This webinar is the follow up from Part 1: Advocacy & Lobbying, which focused on the federal definitions of lobbying and best practices of advocacy. Please find the archived Part 1 Webinar here.

The webinar will have live captioning. For any other reasonable accommodations, please let us know by no later than November 12th at 12PM PST. 

Read More at Article Source
Master Plan for Aging IHSS listening sessions

October 23, 2019

The California Department of Social Services, in collaboration with the Master Plan for Aging Long-Term Services and Supports Subcommittee, invites you to our first of five public forums on the sustainability and future of the In-Home Supportive Services program. 
 
IHSS is one of the four main focuses of the Long-Term Services and Supports Subcommittee. These listening sessions will give IHSS recipients, providers and other stakeholders an opportunity to discuss sustainability strategies and IHSS program enhancements. These ideas will then be shared with the LTSS subcommittee.
 
The first IHSS listening session will take place as follows:
Date: Thursday, Oct. 31, 2019
Time: 2:30-4:30 p.m.
Location: CDSS, 744 P St., Sacramento. OB 9, Room 205 (CDSS auditorium)
Dial in:  888-282-0434; 3622742
 
If you plan to attend in person, please RSVP to MPAIHSS@dss.ca.gov. Sign Language interpreters will be provided upon request. For questions about accessibility or to request accommodations, please email MPAIHSS@dss.ca.gov or call Jeffrey Berndt at (916) 651-5362 no later than Monday, Oct. 28.
 
Additional information on the Master Plan for Aging can be found on the Together We EngAGE website.  If you would like to be added to the Master Plan for Aging stakeholder distribution list, please submit your request here.
 
We look forward to a productive discussion with the stakeholder community. 
 
Date: Thursday, Oct. 31, 2019
Time: 2:30-4:30 p.m.
Location: CDSS, 744 P St., Sacramento. OB 9, Room 205 (CDSS auditorium)
Dial in:  888-282-0434; 3622742

Read More at Article Source
State EVV Compliance Survey

October 18, 2019

From Center for Medicaid and CHIP Services (CMCS)

Section 12006(a) of the 21st Century Cures Act (the Cures Act) requires states to implement electronic visit verification (EVV) for all Medicaid-funded personal care services (PCS) and home health care services (HHCS) that require an in-home visit by a provider. States are required to implement EVV for PCS by January 1, 2020 and HHCS by January 1, 2023, unless they have been granted a one year good-faith effort (GFE) exemption. Otherwise, the state is subject to incremental Federal Medical Assistance Percentage (FMAP) reductions beginning in the first calendar quarter of 2020 for PCS expenditures. 

Starting November 2019, states will have the opportunity to complete a web-based survey to self-report their progress on implementing EVV for PCS.  The Centers for Medicare and Medicaid Services (CMS) will use the survey to evaluate states’ compliance with EVV requirements and to determine whether FMAP reductions will need to be applied.  The survey assesses whether states require the use of EVV for all PCS that fall within the scope of the Cures Act and asks states to describe how they have ensured their EVV systems:


  •  Are minimally burdensome;

  •  Do not limit provider selection; 

  •  Do not constrain beneficiaries’ selection of a caregiver;

  •  Do not impede the manner in which care is delivered;

  •  Are conducted in accordance with the requirements of HIPAA privacy and security law; and,

  •  Took into account a stakeholder process that included input from beneficiaries, family caregivers, and providers.


The survey tool will only be accessible to State Medicaid Directors and/or their designees. The survey will be a live form, meaning states will have the ability to update their EVV status on a continuous basis. Because FMAP reductions are assigned each quarter, states not in compliance with Cures Act requirements will be encouraged to review their survey information on a quarterly basis and update their response when they achieve compliance to ensure FMAP reductions are lifted in a timely manner. States who wish to demonstrate compliance by January 1, 2020 should complete the survey by that date to avoid FMAP reductions.  Please note that states who have been granted a GFE exemption will not need to complete the survey until November, 2020.  You can view which states have been approved for a GFE exemption on the CMS EVV website. In addition, the EVV compliance survey materials are available to view on Reginfo.gov.  

CMS will be following up with state Medicaid agencies in November with specific instructions for completing the survey online. In addition CMS will be hosting a webinar on October 23, 2019 from 1:00 to 2:30 pm EST to walk states through the survey questions.  Please email EVV@cms.hhs.gov with any questions about the survey. 

Participant-only Registration
Participant only dial in number: +1 (833) 612-0014 Conference ID: 2889575
Note: the dial-in number and link to participate will also be sent out once registered for the event.

Read More at Article Source
​HUD Announces Funding Opportunities to Expand Housing for People with Disabilities

October 18, 2019

From: Administration for Community Living (ACL) News & Events:

The U.S. Department of Housing and Urban Development (HUD) announced a combined $112 million available to expand the supply of permanent affordable housing for very low-income persons with disabilities.
Funding is available for the two components of the Section 811 Program:


The available funding includes $75 million in capital advances for the development of new supportive housing for this vulnerable population and $37 million in rental assistance to eligible housing agencies working closely with state health and human services or Medicaid agencies. 

Section 811 Capital Advances
HUD is offering up to $75 million in capital advance funding to eligible nonprofit organizations to fund innovative permanent supportive housing models that will be at the forefront of design, service delivery, and efficient use of federal resources. Applicants are encouraged to establish formal partnerships with health and human service agencies or other organizations (such as centers for independent living) with a demonstrated capacity to coordinate voluntary services and supports for persons with disabilities to enable them to live independently in the community.
To encourage development within Opportunity Zones, HUD will award two preference points to applicants seeking to construct or rehabilitate developments in qualified Opportunity Zone census tracts. Read HUD’s Section 811 Capital Advance funding notice for more information. The closing date for applications is February 10, 2020.

Section 811 Project Rental Assistance
HUD is making up to $37 million in rental assistance available to eligible housing agencies working closely with State Health and Human Service/Medicaid Agencies. Eligible applicants include any housing agency currently allocating Low-Income Housing Tax Credits (LIHTC); participating jurisdictions administering affordable housing programs assisted through HUD’s HOME Investment Partnerships (HOME) Program; and/or housing agencies operating similar federal or state affordable housing programs.
Eligible applicants are encouraged to align their Project Rental Assistance Programs with state or local initiatives that will directly increase development of permanent supportive housing for extremely low-income persons with disabilities. Read HUD’s Section 811 Project Rental Assistance funding notice for more information. The closing date for applications is February 10, 2020.

Read More at Article Source
Kaiser & Your Medical Equipment

October 14, 2019

Disability Rights Education & Defense Fund (DREDF) is seeking information about Kaiser and whether Kaiser pays for
your medical equipment.


Your medical equipment/durable medical equipment (DME) is a part of long term services and supports (LTSS) which paves the way for people  with disabilities and older adults to live and age in our homes and communities. 

DREDF seeks individuals or organizations who have faced exclusions, monetary caps, or high cost-sharing on the coverage of needed medical equipment (e.g., wheelchairs, ventilators, or transfer lifts) in an individual or small group Kaiser health insurance plan. If this applies to you, contact Hongyu Min at info@dredf.org or (510) 644-2555 for more information.

Help DREDF understand this issue by sharing your story and sharing this with people you know! 

Read more HERE

#LTSS4All 

 

Read More at Article Source
Require Uber & Lyft to provide wheelchair access!

October 2, 2019

California advocates for disability rights: 
Here’s your opportunity to make Uber & Lyft more wheelchair-accessible!

 

> > > Please share this notice < < <

 
ATTEND an October 10 workshop OR SEND written comments on The TNC Access for All Act, a California law to provide wheelchair-accessible rides from Uber and Lyft (and similar companies), and to charge a small fee on every TNC ride to create a fund to pay for on-demand transportation using WAVs (wheelchair accessible vehicles). 
 
This San Diego workshop is being held by the California Public Utilities Commission (CPUC), the agency with authority over TNCs like Uber and Lyft. (“TNCs” are Transportation Network Companies.)
 
Key info from the CPUC notices below and attached:
 
WHAT: 
Workshop on TNC Access for All Act
CPUC proceeding R.19-02-012
 
WHEN: 
Thursday, October 10, 9:30 - 5
 
WHERE: 
 
In person:
San Diego Association of Governments (SANDAG)
401 B. Street, Suite 700, San Diego, CA 92101
 
By phone:
Local access number: 1-415-655-0002 (US) 
   Access code: 960 951 628
 
On the Internet: (for the slides only — audio is by phone)
 
Join Webex Meeting
https://cpuc.webex.com/cpuc/j.php?MTID=mfc781b09b7ddf7d2e8afde53b80daf7b or https://cpuc.webex.com and enter the meeting number
Meeting number: 960 951 628
Meeting password: SB1376
 

To submit written comments: Send them to the CPUC Public Advisor’s Office at public.advisor@cpuc.ca.gov by the workshop date, October 10.  You must include the proceeding number, R.19-02-012; ideally, in the subject line.
 
To people willing to make spoken comments, either in person or by phone:
 
Disability Rights Education & Defense Fund (DREDF) contacted the CPUC to clarify who needs to provide advance notice by Oct. 4 that you wish to speak at the workshop. CPUC staff replied that the morning "presentation" portions are primarily for Parties to present their proposals that were due last Fri 9/27—those presenters should give advance notice—but that all attendees will be able to ask questions after each presentation. [DREDF comment: It is useful to hear these presentations to learn the important issues.] In the afternoon, all attendees, with or without advance notice, whether in-person or by phone, will have the opportunity to provide input during the "open discussions” on the agenda.  [DREDF comment: whether or not you’re available in the morning, we hope you will go, or call in, in the afternoon, and state one of more of the Talking Points listed below. There will likely be a time limit on public comments.] 

Talking Points to convey to the CPUC about the TNC Access for All Act (referred to below as the TNC Access Act, for short): 

  1. It’s urgent that the CPUC establish crucial benchmarks before allowing TNCs such as Uber and Lyft to take “offsets” and “exemptions.” Offsets and exemptions allow TNCs to utilize the funding generated under the TNC Access Act to provide WAV service by charging a 10-cent fee on every TNC ride. If these benchmarks, which are standards required of TNCs by the CPUC, aren’t defined FIRST, then there’s nothing to keep TNCs from using up available funds without providing high-quality on-demand service to wheelchair users. 

  2. When drivers cancel a ride, this must be taken into account when calculating response time. If a rider is trying to reach a destination, the TNC response time begins when the rider made their first request!

  3. In establishing response times, the CPUC should add a new benchmark: that TNCs must provide 90% of WAV trips within an appropriate time, based on the response times non-disabled riders receive in each California county. The response-time requirement that's already in the TNC Act, which is for only 80% of WAV trips, is not strong enough to require the quality of service in the TNC Access Act’s goals: a continuously improved, reliable, and available level of service. At 80%, one in five rides can take far longer for the car to arrive than it would for anyone else. For example, in some localities, it will be important to require 80% of trips to begin within 10 minutes or less from when the vehicle is requested, and 90% of trips to begin within 20 minutes or less. Such a benchmark is inadequate with only the “80%” provision; it’s critical that a “90%” provision be added. Other transportation systems have benchmarks up to 95% of all rides, and higher. 

  4. One key measure of acceptable service that the CPUC must address: a rider must never be stranded at their destination. The rider must be able to return home when they wish, just like anyone else.

  5. When offsets are taken, TNCs may only count costs that exceed what it costs to provide the same trip in a non-WAV vehicle.

  6. TNCs must be required to provide thorough driver training and vehicle access safety features such as effective wheelchair securements. These things are necessary for effective WAV service.

  7. TNCs must be required to provide detailed documentation to the CPUC, and all reported data must be available to the general public.

  8. The TNC Access Act also allows other access providers to obtain funding generated by the Act, if TNCs don’t meet the Act’s standards. It's important for the CPUC to clarify that these access providers are not limited to TNCs alone, which would be a nonsensical interpretation of the Act, and would limit the scope of providers needed by the disability community.


Background:
 
California disability advocates may remember that last year, California state Senator Jerry Hill sponsored the TNC Access for All Act, which became law on September 22, 2018. (Read the law at https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=201720180SB1376). 

Now the CPUC is working on how to regulate this law, and things are moving fast. Please become involved!
 
Note that programs along somewhat similar lines are being implemented in Seattle, Portland, Chicago, and New York City. Each program takes a different approach. California’s is the first known statewide effort. 
 
Disability groups that are working together to pressure the CPUC to issue strong, effective rules are: Disability Rights California (DRC), Center for Accessible Technology (CforAT), Disability Rights Education & Defense Fund (DREDF), and other groups committed to fully accessible TNC service, including supportive transit agencies. 

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National Survey on Health & Disability

September 24, 2019

Participants Needed: National Survey on Health and Disability
Please share!

The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)-funded Collaborative on Health Reform & Independent Living (CHRIL) is looking for adults with disabilities to complete an online survey about health insurance and health care services. Whether you have private insurance, insurance from an employer, TRICARE, Medicaid, Medicare, or no insurance right now please complete the survey.

• Adults, 18 and over, with any type of disability, mental or physical health condition are encouraged to participate
• The survey should take about 20 minutes to complete
• Responses are anonymous

To complete the survey, click the link below:
2019 National Survey on Health and Disability
(or copy & paste into your browser: https://tinyurl.com/NSHD2019)

Whether or not you complete the survey, you can choose to enter a drawing to win one of ten $100 gift cards. If you prefer to take the survey over the phone or have any questions about participating, please call toll-free 1-855-556-6328 (Voice/TTY) or email healthsurvey@ku.edu.

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Happy National Voter Registration Day!

September 24, 2019

Yellow background: "Happy National Voter Registration Day #DisabilityVoteCA is growing & includes YOU! (w/ arrrows pointing to "YOU"). DO Network Logo & National Voter Registration Day logo. Bottom it says "Make sure you are registered today!":Then there is a hyperlink to: https://registertovote.ca.gov/?t=vra&id=134


Help us to continue to grow the Disability voting bloc TODAY. Not sure you are registered? Have you moved, gotten married or changed your name? You may need to register again! 
 


Need some inspiration?
image that says: National Disability Voter Registration Week: 2019 RECAP. Has the REVUP logo and DOnetwork logo with hashtag #DisabilityVoteCA

Check out the power of our community with the recap from 2019 National Disability Voter Registration Week! 





 

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Reminder to Register - 9/23 Advocacy & Lobbying Webinar

September 20, 2019

There's still time to join us!
 

Part 1: Advocacy and Lobbying: The National Perspective
Monday, September 23, 2019 
11am-12:30pm PST 
REGISTER NOW


Description: 

Systems Change Advocacy is at the core of the Independent Living & Disability Rights movement. Yet with changes in staff, community, leadership, and laws, many of us are receiving mixed messaging about how to achieve systems change - especially in regards to definitions of advocacy and lobbying. The presenters will not only dispel myths but will explore differences between lobbying and advocacy at a local independent living center, and will present tangible tools and strategies to achieve systems change. 

This webinar is specifically focused on advocacy v. lobbying from the federal perspective. Part 2 will be a continuation of this crucial conversation, specifically from the California perspective. Date and time will be released soon. 

Target Audience: 

This webinar will specifically cover material that will speak to lobbying and advocacy in the context of the Independent Living network. Therefore, this webinar will be relevant to all independent living center staff, and other federally funded organizations. We also invite any and all partner organizations, funders, advocates and organizers.
 
Speakers: 

Steve Higgins is the Executive Director of Independence Associates, Inc. located in East Bridgewater MA. He currently serves on the National Council on Independent Living (NCIL) Board as the Representative for Region I and as Co-Chair of the ADA / Civil Rights Subcommittee. Additionally, Steve has served several terms as a member of the Massachusetts State Independent Living Council (SILC)
 
Kimberly Tissot serves as the Executive Director of Able South Carolina, which serves half the state. She currently serves as the Co-Chair of the NCIL ADA / Civil Rights Subcommittee and the NCIL Parenting Task Force, as well as many statewide boards and councils. 

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Nominate an Advocate of the Year (Deadline Friday 9/20)

September 16, 2019

Photo of Italian American woman smiling, wearing a tiara on her head. Text: Nominate an Advocate of the Year. Deadline Sept 20.Starting this year at the 2019 Independent Living Conference, California Foundation for Independent Living Centers (CFILC) will recognize one individual and / or organization for outstanding advocacy efforts.

The Teresa Favuzzi Advocate of the Year is recognized for their outstanding systems advocacy efforts consistent with Independent Living goals and philosophy. The award is named after Teresa M.S. Favuzzi, long-time Executive Director of CFILC and lifelong intersectional disability advocate. 
 


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Webinar Announcement: 9/23 - Advocacy & Lobbying: Knowing the Difference

September 9, 2019

Please join the Disability Organizing Network for our webinar: 
Advocacy & Lobbying: Knowing the Difference

DATE: Monday, September 23, 2019 
TIME: 11AM-12:30PM PST 

Description:
Systems Change Advocacy is at the core of the Independent Living & Disability Rights movement. Yet with changes in staff, community, leadership, and laws, many of us are receiving mixed messaging about how to achieve systems change - especially in regards to definitions of advocacy and lobbying. The presenters will not only dispel myths but will explore differences between lobbying and advocacy at a local independent living center, and will present tangible tools and strategies to achieve systems change.

Target Audience:
This webinar will specifically cover material that will speak to lobbying and advocacy in the context of the Independent Living network. Therefore, this webinar will be relevant to all independent living center staff, and other federally funded organizations. We also invite any and all partner organizations, funders, advocates and organizers.

Speakers:
Steve Higgins is the Executive Director of Independence Associates, Inc. located in East Bridgewater MA. He currently serves on the National Council on Independent Living (NCIL) Board as the Representative for Region I and as Co-Chair of the ADA / Civil Rights Subcommittee. Additionally, Steve has served several terms as a member of the Massachusetts State Independent Living Council (SILC)

Kimberly Tissot serves as the Executive Director of Able South Carolina, which serves half the state. She currently serves as the Co-Chair of the NCIL ADA / Civil Rights Subcommittee and the NCIL Parenting Task Force, as well as many statewide boards and councils.

Notes on Accessibility:
There will be live captioning for the webinar. If you are in need of any other accommodations, please contact the Disability Organizing Network directly



 

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Care Agenda: Expanding LTSS for All Town Halls

August 30, 2019

Join us for town halls about the solving the State's need for affordable long-term supports and services so that we may all live and age with dignity.


  • LOS ANGELES AREA
    Monday, September 16, 2019 | 5:30pm – 7:30pm
    Temple Beth Hillel: 12326 Riverside Dr, Valley Village, CA 91607


  • SAN FRANCISCO BAY AREA
    Thursday, September 19, 2019 | 9:45AM - 12PM
    Koret Auditorium, San Francisco Public Library: 100 Larkin Street, SF 94102



* * * RSVP: https://www.surveymonkey.com/r/TownHalls4LTSS * * *

By 2030 9 million Californians will be over the age of 65. That's 3 million more than there are today! This unprecedented growth in the senior population is driving a skyrocketing demand for long term services and supports (LTSS), yet we see increasing evidence that paying for these services is bankrupting middle class seniors and their families throughout the state.

The event will include a panel discussion with state legislators on the challenges that seniors and people with disabilities face when seeking affordable long term care and the caregivers who provide these essential services.

Food, childcare, Spanish interpretation and other accommodations will be provided.

The 9/19 event is hosted by the San Francisco Care Council, including UDW/AFSCME Local 3930, SEIU Local 2015, Caring Across Generations, the California Domestic Workers Coalition, SF Family Caregiver Alliance, Senior and Disability Action, California Foundation for Independent Living Centers, and Hand in Hand: Domestic Employers Network.

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Opportunity for Public Comment: U.S. Access Board Releases Voluntary Guidelines for Onboard Wheelchairs

August 20, 2019

Opportunity for public comment: advisory guidelines for onboard wheelchairs,  used to transport someone between an aircraft seat and an aircraft restroom.
 
Public hearing September 12, comments due October 21.

U.S. Access Board Releases Voluntary Guidelines for Onboard Wheelchairs for Public Comment
The U.S. Access Board has released for public comment advisory guidelines for wheelchairs used on commercial passenger aircraft during flight. These onboard wheelchairs are provided by air carriers as a means of facilitating the transfer of passengers with disabilities to aircraft lavatories since personal wheelchairs cannot be used in the cabin. The Department of Transportation (DOT) has expressed its intention to supplement its regulations under the Air Carrier Access Act (ACAA) to include performance standards for onboard wheelchairs on covered aircraft. The Board is developing these non-binding guidelines as technical assistance to air carriers and manufacturers of onboard wheelchairs by providing an example of how to meet DOT's planned performance standards.

As indicated in a notice published in the Federal Register, the guidelines specify dimensions, features, and capabilities for onboard wheelchairs that will allow passengers with disabilities to be more safely and comfortably transported aboard airplanes in flight. In addition, the guidelines include criteria to allow the onboard wheelchair to fully enter the lavatory in a backward orientation and be positioned over a closed toilet, and for the lavatory door to be closed. This feature would afford those passengers who cannot independently transfer to the toilet to have privacy in performing non-toileting tasks related to personal hygiene or medical needs. The Board has posed a number of questions to the public about specific provisions in the guidelines but welcomes input on all portions of the document.

As part of a negotiated rulemaking to improve access for air travelers with disabilities, DOT has put forth plans to supplement its ACAA regulations and require onboard wheelchairs with enhanced functionality on aircraft with more than 125 passenger seats.

Related information, including instructions for submitting comments, is posted at www.regulations.gov (Docket ATBCB-2019-0002). Comments are due October 21, 2019. In addition, on September 12, 2019, the Board will hold a public hearing that will provide an opportunity to submit comments either in person or by phone. Further details will be posted on the Board's website at www.access-board.gov/onboard. Those who wish to provide testimony at the hearing should contact Rose Marie Bunales at (202) 272-0006 (voice) or bunales@access-board.gov by September 5, 2019.

For further details on the guidelines or the public hearing, contact Wendy Marshall at (202) 272-0043 (voice) or marshall@access-board.gov, or Mario Damiani at (202) 272-0050 (voice) or damiani@access-board.gov.

Public Hearing on Advisory Guidelines for Aircraft Onboard Wheelchairs  
September 12, 2019, 9:30 - 4:00 (ET)
Remote attendance options will be posted at: www.access-board.gov/onboard
Access Board Conference Center
1331 F Street, NW, Suite 800
Washington, D.C.


Note: For the comfort of all participants and to promote a fragrance-free environment, attendees are requested not to use perfume, cologne, or other fragrances.

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SURVEY ON BARRIERS TO RECEIVING SUPPORTS TO COMMUNICATE

August 19, 2019

Please share:


  • Are you a person with a developmental disability who needs support to communicate?

  • Are you a family member of a person who is non-speaking, minimally speaking, or unreliably speaking?

  • Are you a professional working with people with disabilities who need support to communicate?

  • This email is for you!



SURVEY ON BARRIERS TO RECEIVING SUPPORTS TO COMMUNICATE
Disability Voices United and Disability Rights California are leading a project called the Communication Disabilities Access Network (CDAN). The project explores the various problems that people with developmental disabilities face when trying to access communication supports. We want to know the problems you are facing so that we can develop informational materials and advocacy efforts to break down the barriers.
For this survey, "communication supports" means all aspects of a communications system that helps a person with a disability communicate. This could include Augmentative and Alternative Communication (AAC) and assistive technologies (AT).
Communication supports could be equipment, such as a letterboard, iPad, smart phone, DynaVox, JAWS, and PECs. It also consists of services, such as sign language interpreters and communication partners. It can also include communication methods, such as gestures, facilitated communication, Rapid Prompting Method, sign language, braille, and others. This survey also covers the need for assessments, training, and ongoing supervision.

There are three versions of this survey: 
1) For people with developmental disabilities who need communication supports
2) For family members of a person with a developmental disability who need communication supports , and
3) For professionals (direct care providers, agency service providers, speech therapists, educators, etc.) who serve people with disabilities who need communication supports
Click on the correct link below to find the survey.

CLICK HERE FOR SURVEY FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES/ SELF-ADVOCATES

CLICK HERE FOR SURVEY FOR FAMILY MEMBERS

CLICK HERE FOR SURVEY FOR PROFESSIONALS

Feel free to forward this survey to others!

Disability Voices United is a statewide advocacy organization directed by and for individuals with developmental disabilities and family members.
We advocate for:

Choice and control over our lives,
Meaningful outcomes that matter to us, and
Systems that are equitable and accountable to us.

www.disabilityvoicesunited.org

DONATE JOIN

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NDLA Organizers Forum on 8/20: Fighting Racism & White Supremacy

August 15, 2019

Organizers Forum: Fighting Racism & White Supremacy

Tuesday, August 20, 2019
1:00-2:00 p.m. Eastern; 12:00-1:00 Central; 11:00-12:00 Mountain; 10:00-11:00 Pacific
RSVP
Video link:  https://zoom.us/j/158367875
Call-in: 1-929-205-6099, Meeting ID 158 367 875#
Or find your local number: https://zoom.us/u/aedVwZm7zQ

As we hit 400 years since the beginning of slavery in the U.S., hundreds of Latinx immigrants are forced into camps, and the President himself encourages racism and violence, let's talk about how we in disability communities can take action. What work needs to be done within the disability rights movement, and how can we act in solidarity with immigrant rights groups and others? More conversations like this are happening in disability spaces and let's use this call as an opportunity to keep learning and growing.  

We'll be on video! Click the Zoom link above and turn on your webcam, or you can just call in from your phone. Unfortunately we will not have the online conference line available as in prior months. Please test your webcam and speakers before the call.

Speakers to be announced.

Accommodations & CART: 


  • The call will have real-time captioning (CART) at: https://2020archive.1capapp.com/event/forum/. No username and password needed, when you log on at the time of the call.

  • To ask questions via CART: Sign-in to the chat function on the right side of the transcript and type your question. One of the call facilitators will read questions posted there. You can also type questions through the Zoom video portal.

  • Because we want to maximize the generously donated CART services, we will begin the call promptly at 1:00 p.m. and end the call promptly at 2:00 p.m. Eastern.

  • Thank you to the National Disability Leadership Alliance for sponsoring the captioning of this call. Thank you to Senior and Disability Action for providing the video conference service.

  • If you need additional accommodations to participate in the call, please let us know as soon as possible. 



Mark your calendars! The Organizer's Forum has a call on the 3rd Tuesday of each month, 1:00-2:00 p.m. Eastern. 


Background: 
The Organizing Workgroup of the National Disability Leadership Alliance hosts these calls the third Tuesday of every month as a resource for disability organizers, in an effort toward building the organizing capacity of the disability community across the country. They generally follow the format of a Welcome followed by 2-3 experts in a given area speaking for a few minutes on their experiences, advice and challenges. The calls include a 20-30 minute question and answer period. 

Please share widely! 

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Welcome to the Disability Organizing Network (DOnetwork) website! The DOnetwork calls to action the California Disability Communities and allies, through community organizing, advocacy, education, leadership development and coalition building to effect systems change in local, state and national issues.

The CFILC Disability Organizing Network is a statewide disability advocacy network of 28 Independent Living Centers and the communities they serve. In each center there is a full time staff person devoted to increasing civic participation through community organizing, education and advocacy around issues that affect the Disability Communities.