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News & Topics in Our Community

*Postponed* Webinar Part 2: Advocacy & Lobbying in California

November 5, 2019

*NOTE* Due to a change in presenters - we are needing to postpone. The new dates will be released soon!

Please join the Disability Organizing Network for Webinar Part 2: Advocacy & Lobbying in California. The webinar will be presented in partnership with the Alliance for Justice Bolder Advocacy's California team. The webinar will cover California specific law as it pertains to lobbying and advocacy.
Date: To Be Determined 
Time: To Be Determined 

This webinar is the follow up from Part 1: Advocacy & Lobbying, which focused on the federal definitions of lobbying and best practices of advocacy. Please find the archived Part 1 Webinar here.

The webinar will have live captioning. For any other reasonable accommodations, please let us know by no later than November 12th at 12PM PST. 

Read More at Article Source
Master Plan for Aging IHSS listening sessions

October 23, 2019

The California Department of Social Services, in collaboration with the Master Plan for Aging Long-Term Services and Supports Subcommittee, invites you to our first of five public forums on the sustainability and future of the In-Home Supportive Services program. 
IHSS is one of the four main focuses of the Long-Term Services and Supports Subcommittee. These listening sessions will give IHSS recipients, providers and other stakeholders an opportunity to discuss sustainability strategies and IHSS program enhancements. These ideas will then be shared with the LTSS subcommittee.
The first IHSS listening session will take place as follows:
Date: Thursday, Oct. 31, 2019
Time: 2:30-4:30 p.m.
Location: CDSS, 744 P St., Sacramento. OB 9, Room 205 (CDSS auditorium)
Dial in:  888-282-0434; 3622742
If you plan to attend in person, please RSVP to Sign Language interpreters will be provided upon request. For questions about accessibility or to request accommodations, please email or call Jeffrey Berndt at (916) 651-5362 no later than Monday, Oct. 28.
Additional information on the Master Plan for Aging can be found on the Together We EngAGE website.  If you would like to be added to the Master Plan for Aging stakeholder distribution list, please submit your request here.
We look forward to a productive discussion with the stakeholder community. 
Date: Thursday, Oct. 31, 2019
Time: 2:30-4:30 p.m.
Location: CDSS, 744 P St., Sacramento. OB 9, Room 205 (CDSS auditorium)
Dial in:  888-282-0434; 3622742

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State EVV Compliance Survey

October 18, 2019

From Center for Medicaid and CHIP Services (CMCS)

Section 12006(a) of the 21st Century Cures Act (the Cures Act) requires states to implement electronic visit verification (EVV) for all Medicaid-funded personal care services (PCS) and home health care services (HHCS) that require an in-home visit by a provider. States are required to implement EVV for PCS by January 1, 2020 and HHCS by January 1, 2023, unless they have been granted a one year good-faith effort (GFE) exemption. Otherwise, the state is subject to incremental Federal Medical Assistance Percentage (FMAP) reductions beginning in the first calendar quarter of 2020 for PCS expenditures. 

Starting November 2019, states will have the opportunity to complete a web-based survey to self-report their progress on implementing EVV for PCS.  The Centers for Medicare and Medicaid Services (CMS) will use the survey to evaluate states’ compliance with EVV requirements and to determine whether FMAP reductions will need to be applied.  The survey assesses whether states require the use of EVV for all PCS that fall within the scope of the Cures Act and asks states to describe how they have ensured their EVV systems:

  •  Are minimally burdensome;

  •  Do not limit provider selection; 

  •  Do not constrain beneficiaries’ selection of a caregiver;

  •  Do not impede the manner in which care is delivered;

  •  Are conducted in accordance with the requirements of HIPAA privacy and security law; and,

  •  Took into account a stakeholder process that included input from beneficiaries, family caregivers, and providers.

The survey tool will only be accessible to State Medicaid Directors and/or their designees. The survey will be a live form, meaning states will have the ability to update their EVV status on a continuous basis. Because FMAP reductions are assigned each quarter, states not in compliance with Cures Act requirements will be encouraged to review their survey information on a quarterly basis and update their response when they achieve compliance to ensure FMAP reductions are lifted in a timely manner. States who wish to demonstrate compliance by January 1, 2020 should complete the survey by that date to avoid FMAP reductions.  Please note that states who have been granted a GFE exemption will not need to complete the survey until November, 2020.  You can view which states have been approved for a GFE exemption on the CMS EVV website. In addition, the EVV compliance survey materials are available to view on  

CMS will be following up with state Medicaid agencies in November with specific instructions for completing the survey online. In addition CMS will be hosting a webinar on October 23, 2019 from 1:00 to 2:30 pm EST to walk states through the survey questions.  Please email with any questions about the survey. 

Participant-only Registration
Participant only dial in number: +1 (833) 612-0014 Conference ID: 2889575
Note: the dial-in number and link to participate will also be sent out once registered for the event.

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​HUD Announces Funding Opportunities to Expand Housing for People with Disabilities

October 18, 2019

From: Administration for Community Living (ACL) News & Events:

The U.S. Department of Housing and Urban Development (HUD) announced a combined $112 million available to expand the supply of permanent affordable housing for very low-income persons with disabilities.
Funding is available for the two components of the Section 811 Program:

The available funding includes $75 million in capital advances for the development of new supportive housing for this vulnerable population and $37 million in rental assistance to eligible housing agencies working closely with state health and human services or Medicaid agencies. 

Section 811 Capital Advances
HUD is offering up to $75 million in capital advance funding to eligible nonprofit organizations to fund innovative permanent supportive housing models that will be at the forefront of design, service delivery, and efficient use of federal resources. Applicants are encouraged to establish formal partnerships with health and human service agencies or other organizations (such as centers for independent living) with a demonstrated capacity to coordinate voluntary services and supports for persons with disabilities to enable them to live independently in the community.
To encourage development within Opportunity Zones, HUD will award two preference points to applicants seeking to construct or rehabilitate developments in qualified Opportunity Zone census tracts. Read HUD’s Section 811 Capital Advance funding notice for more information. The closing date for applications is February 10, 2020.

Section 811 Project Rental Assistance
HUD is making up to $37 million in rental assistance available to eligible housing agencies working closely with State Health and Human Service/Medicaid Agencies. Eligible applicants include any housing agency currently allocating Low-Income Housing Tax Credits (LIHTC); participating jurisdictions administering affordable housing programs assisted through HUD’s HOME Investment Partnerships (HOME) Program; and/or housing agencies operating similar federal or state affordable housing programs.
Eligible applicants are encouraged to align their Project Rental Assistance Programs with state or local initiatives that will directly increase development of permanent supportive housing for extremely low-income persons with disabilities. Read HUD’s Section 811 Project Rental Assistance funding notice for more information. The closing date for applications is February 10, 2020.

Read More at Article Source
Kaiser & Your Medical Equipment

October 14, 2019

Disability Rights Education & Defense Fund (DREDF) is seeking information about Kaiser and whether Kaiser pays for
your medical equipment.

Your medical equipment/durable medical equipment (DME) is a part of long term services and supports (LTSS) which paves the way for people  with disabilities and older adults to live and age in our homes and communities. 

DREDF seeks individuals or organizations who have faced exclusions, monetary caps, or high cost-sharing on the coverage of needed medical equipment (e.g., wheelchairs, ventilators, or transfer lifts) in an individual or small group Kaiser health insurance plan. If this applies to you, contact Hongyu Min at or (510) 644-2555 for more information.

Help DREDF understand this issue by sharing your story and sharing this with people you know! 

Read more HERE



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Require Uber & Lyft to provide wheelchair access!

October 2, 2019

California advocates for disability rights: 
Here’s your opportunity to make Uber & Lyft more wheelchair-accessible!


> > > Please share this notice < < <

ATTEND an October 10 workshop OR SEND written comments on The TNC Access for All Act, a California law to provide wheelchair-accessible rides from Uber and Lyft (and similar companies), and to charge a small fee on every TNC ride to create a fund to pay for on-demand transportation using WAVs (wheelchair accessible vehicles). 
This San Diego workshop is being held by the California Public Utilities Commission (CPUC), the agency with authority over TNCs like Uber and Lyft. (“TNCs” are Transportation Network Companies.)
Key info from the CPUC notices below and attached:
Workshop on TNC Access for All Act
CPUC proceeding R.19-02-012
Thursday, October 10, 9:30 - 5
In person:
San Diego Association of Governments (SANDAG)
401 B. Street, Suite 700, San Diego, CA 92101
By phone:
Local access number: 1-415-655-0002 (US) 
   Access code: 960 951 628
On the Internet: (for the slides only — audio is by phone)
Join Webex Meeting or and enter the meeting number
Meeting number: 960 951 628
Meeting password: SB1376

To submit written comments: Send them to the CPUC Public Advisor’s Office at by the workshop date, October 10.  You must include the proceeding number, R.19-02-012; ideally, in the subject line.
To people willing to make spoken comments, either in person or by phone:
Disability Rights Education & Defense Fund (DREDF) contacted the CPUC to clarify who needs to provide advance notice by Oct. 4 that you wish to speak at the workshop. CPUC staff replied that the morning "presentation" portions are primarily for Parties to present their proposals that were due last Fri 9/27—those presenters should give advance notice—but that all attendees will be able to ask questions after each presentation. [DREDF comment: It is useful to hear these presentations to learn the important issues.] In the afternoon, all attendees, with or without advance notice, whether in-person or by phone, will have the opportunity to provide input during the "open discussions” on the agenda.  [DREDF comment: whether or not you’re available in the morning, we hope you will go, or call in, in the afternoon, and state one of more of the Talking Points listed below. There will likely be a time limit on public comments.] 

Talking Points to convey to the CPUC about the TNC Access for All Act (referred to below as the TNC Access Act, for short): 

  1. It’s urgent that the CPUC establish crucial benchmarks before allowing TNCs such as Uber and Lyft to take “offsets” and “exemptions.” Offsets and exemptions allow TNCs to utilize the funding generated under the TNC Access Act to provide WAV service by charging a 10-cent fee on every TNC ride. If these benchmarks, which are standards required of TNCs by the CPUC, aren’t defined FIRST, then there’s nothing to keep TNCs from using up available funds without providing high-quality on-demand service to wheelchair users. 

  2. When drivers cancel a ride, this must be taken into account when calculating response time. If a rider is trying to reach a destination, the TNC response time begins when the rider made their first request!

  3. In establishing response times, the CPUC should add a new benchmark: that TNCs must provide 90% of WAV trips within an appropriate time, based on the response times non-disabled riders receive in each California county. The response-time requirement that's already in the TNC Act, which is for only 80% of WAV trips, is not strong enough to require the quality of service in the TNC Access Act’s goals: a continuously improved, reliable, and available level of service. At 80%, one in five rides can take far longer for the car to arrive than it would for anyone else. For example, in some localities, it will be important to require 80% of trips to begin within 10 minutes or less from when the vehicle is requested, and 90% of trips to begin within 20 minutes or less. Such a benchmark is inadequate with only the “80%” provision; it’s critical that a “90%” provision be added. Other transportation systems have benchmarks up to 95% of all rides, and higher. 

  4. One key measure of acceptable service that the CPUC must address: a rider must never be stranded at their destination. The rider must be able to return home when they wish, just like anyone else.

  5. When offsets are taken, TNCs may only count costs that exceed what it costs to provide the same trip in a non-WAV vehicle.

  6. TNCs must be required to provide thorough driver training and vehicle access safety features such as effective wheelchair securements. These things are necessary for effective WAV service.

  7. TNCs must be required to provide detailed documentation to the CPUC, and all reported data must be available to the general public.

  8. The TNC Access Act also allows other access providers to obtain funding generated by the Act, if TNCs don’t meet the Act’s standards. It's important for the CPUC to clarify that these access providers are not limited to TNCs alone, which would be a nonsensical interpretation of the Act, and would limit the scope of providers needed by the disability community.

California disability advocates may remember that last year, California state Senator Jerry Hill sponsored the TNC Access for All Act, which became law on September 22, 2018. (Read the law at 

Now the CPUC is working on how to regulate this law, and things are moving fast. Please become involved!
Note that programs along somewhat similar lines are being implemented in Seattle, Portland, Chicago, and New York City. Each program takes a different approach. California’s is the first known statewide effort. 
Disability groups that are working together to pressure the CPUC to issue strong, effective rules are: Disability Rights California (DRC), Center for Accessible Technology (CforAT), Disability Rights Education & Defense Fund (DREDF), and other groups committed to fully accessible TNC service, including supportive transit agencies. 

Read More at Article Source
National Survey on Health & Disability

September 24, 2019

Participants Needed: National Survey on Health and Disability
Please share!

The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)-funded Collaborative on Health Reform & Independent Living (CHRIL) is looking for adults with disabilities to complete an online survey about health insurance and health care services. Whether you have private insurance, insurance from an employer, TRICARE, Medicaid, Medicare, or no insurance right now please complete the survey.

• Adults, 18 and over, with any type of disability, mental or physical health condition are encouraged to participate
• The survey should take about 20 minutes to complete
• Responses are anonymous

To complete the survey, click the link below:
2019 National Survey on Health and Disability
(or copy & paste into your browser:

Whether or not you complete the survey, you can choose to enter a drawing to win one of ten $100 gift cards. If you prefer to take the survey over the phone or have any questions about participating, please call toll-free 1-855-556-6328 (Voice/TTY) or email

Read More at Article Source
Happy National Voter Registration Day!

September 24, 2019

Yellow background: "Happy National Voter Registration Day #DisabilityVoteCA is growing & includes YOU! (w/ arrrows pointing to "YOU"). DO Network Logo & National Voter Registration Day logo. Bottom it says "Make sure you are registered today!":Then there is a hyperlink to:

Help us to continue to grow the Disability voting bloc TODAY. Not sure you are registered? Have you moved, gotten married or changed your name? You may need to register again! 

Need some inspiration?
image that says: National Disability Voter Registration Week: 2019 RECAP. Has the REVUP logo and DOnetwork logo with hashtag #DisabilityVoteCA

Check out the power of our community with the recap from 2019 National Disability Voter Registration Week! 


Read More at Article Source
Reminder to Register - 9/23 Advocacy & Lobbying Webinar

September 20, 2019

There's still time to join us!

Part 1: Advocacy and Lobbying: The National Perspective
Monday, September 23, 2019 
11am-12:30pm PST 


Systems Change Advocacy is at the core of the Independent Living & Disability Rights movement. Yet with changes in staff, community, leadership, and laws, many of us are receiving mixed messaging about how to achieve systems change - especially in regards to definitions of advocacy and lobbying. The presenters will not only dispel myths but will explore differences between lobbying and advocacy at a local independent living center, and will present tangible tools and strategies to achieve systems change. 

This webinar is specifically focused on advocacy v. lobbying from the federal perspective. Part 2 will be a continuation of this crucial conversation, specifically from the California perspective. Date and time will be released soon. 

Target Audience: 

This webinar will specifically cover material that will speak to lobbying and advocacy in the context of the Independent Living network. Therefore, this webinar will be relevant to all independent living center staff, and other federally funded organizations. We also invite any and all partner organizations, funders, advocates and organizers.

Steve Higgins is the Executive Director of Independence Associates, Inc. located in East Bridgewater MA. He currently serves on the National Council on Independent Living (NCIL) Board as the Representative for Region I and as Co-Chair of the ADA / Civil Rights Subcommittee. Additionally, Steve has served several terms as a member of the Massachusetts State Independent Living Council (SILC)
Kimberly Tissot serves as the Executive Director of Able South Carolina, which serves half the state. She currently serves as the Co-Chair of the NCIL ADA / Civil Rights Subcommittee and the NCIL Parenting Task Force, as well as many statewide boards and councils. 

Read More at Article Source
Nominate an Advocate of the Year (Deadline Friday 9/20)

September 16, 2019

Photo of Italian American woman smiling, wearing a tiara on her head. Text: Nominate an Advocate of the Year. Deadline Sept 20.Starting this year at the 2019 Independent Living Conference, California Foundation for Independent Living Centers (CFILC) will recognize one individual and / or organization for outstanding advocacy efforts.

The Teresa Favuzzi Advocate of the Year is recognized for their outstanding systems advocacy efforts consistent with Independent Living goals and philosophy. The award is named after Teresa M.S. Favuzzi, long-time Executive Director of CFILC and lifelong intersectional disability advocate. 

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Webinar Announcement: 9/23 - Advocacy & Lobbying: Knowing the Difference

September 9, 2019

Please join the Disability Organizing Network for our webinar: 
Advocacy & Lobbying: Knowing the Difference

DATE: Monday, September 23, 2019 
TIME: 11AM-12:30PM PST 

Systems Change Advocacy is at the core of the Independent Living & Disability Rights movement. Yet with changes in staff, community, leadership, and laws, many of us are receiving mixed messaging about how to achieve systems change - especially in regards to definitions of advocacy and lobbying. The presenters will not only dispel myths but will explore differences between lobbying and advocacy at a local independent living center, and will present tangible tools and strategies to achieve systems change.

Target Audience:
This webinar will specifically cover material that will speak to lobbying and advocacy in the context of the Independent Living network. Therefore, this webinar will be relevant to all independent living center staff, and other federally funded organizations. We also invite any and all partner organizations, funders, advocates and organizers.

Steve Higgins is the Executive Director of Independence Associates, Inc. located in East Bridgewater MA. He currently serves on the National Council on Independent Living (NCIL) Board as the Representative for Region I and as Co-Chair of the ADA / Civil Rights Subcommittee. Additionally, Steve has served several terms as a member of the Massachusetts State Independent Living Council (SILC)

Kimberly Tissot serves as the Executive Director of Able South Carolina, which serves half the state. She currently serves as the Co-Chair of the NCIL ADA / Civil Rights Subcommittee and the NCIL Parenting Task Force, as well as many statewide boards and councils.

Notes on Accessibility:
There will be live captioning for the webinar. If you are in need of any other accommodations, please contact the Disability Organizing Network directly


Read More at Article Source
Care Agenda: Expanding LTSS for All Town Halls

August 30, 2019

Join us for town halls about the solving the State's need for affordable long-term supports and services so that we may all live and age with dignity.

    Monday, September 16, 2019 | 5:30pm – 7:30pm
    Temple Beth Hillel: 12326 Riverside Dr, Valley Village, CA 91607

    Thursday, September 19, 2019 | 9:45AM - 12PM
    Koret Auditorium, San Francisco Public Library: 100 Larkin Street, SF 94102

* * * RSVP: * * *

By 2030 9 million Californians will be over the age of 65. That's 3 million more than there are today! This unprecedented growth in the senior population is driving a skyrocketing demand for long term services and supports (LTSS), yet we see increasing evidence that paying for these services is bankrupting middle class seniors and their families throughout the state.

The event will include a panel discussion with state legislators on the challenges that seniors and people with disabilities face when seeking affordable long term care and the caregivers who provide these essential services.

Food, childcare, Spanish interpretation and other accommodations will be provided.

The 9/19 event is hosted by the San Francisco Care Council, including UDW/AFSCME Local 3930, SEIU Local 2015, Caring Across Generations, the California Domestic Workers Coalition, SF Family Caregiver Alliance, Senior and Disability Action, California Foundation for Independent Living Centers, and Hand in Hand: Domestic Employers Network.

Read More at Article Source
Opportunity for Public Comment: U.S. Access Board Releases Voluntary Guidelines for Onboard Wheelchairs

August 20, 2019

Opportunity for public comment: advisory guidelines for onboard wheelchairs,  used to transport someone between an aircraft seat and an aircraft restroom.
Public hearing September 12, comments due October 21.

U.S. Access Board Releases Voluntary Guidelines for Onboard Wheelchairs for Public Comment
The U.S. Access Board has released for public comment advisory guidelines for wheelchairs used on commercial passenger aircraft during flight. These onboard wheelchairs are provided by air carriers as a means of facilitating the transfer of passengers with disabilities to aircraft lavatories since personal wheelchairs cannot be used in the cabin. The Department of Transportation (DOT) has expressed its intention to supplement its regulations under the Air Carrier Access Act (ACAA) to include performance standards for onboard wheelchairs on covered aircraft. The Board is developing these non-binding guidelines as technical assistance to air carriers and manufacturers of onboard wheelchairs by providing an example of how to meet DOT's planned performance standards.

As indicated in a notice published in the Federal Register, the guidelines specify dimensions, features, and capabilities for onboard wheelchairs that will allow passengers with disabilities to be more safely and comfortably transported aboard airplanes in flight. In addition, the guidelines include criteria to allow the onboard wheelchair to fully enter the lavatory in a backward orientation and be positioned over a closed toilet, and for the lavatory door to be closed. This feature would afford those passengers who cannot independently transfer to the toilet to have privacy in performing non-toileting tasks related to personal hygiene or medical needs. The Board has posed a number of questions to the public about specific provisions in the guidelines but welcomes input on all portions of the document.

As part of a negotiated rulemaking to improve access for air travelers with disabilities, DOT has put forth plans to supplement its ACAA regulations and require onboard wheelchairs with enhanced functionality on aircraft with more than 125 passenger seats.

Related information, including instructions for submitting comments, is posted at (Docket ATBCB-2019-0002). Comments are due October 21, 2019. In addition, on September 12, 2019, the Board will hold a public hearing that will provide an opportunity to submit comments either in person or by phone. Further details will be posted on the Board's website at Those who wish to provide testimony at the hearing should contact Rose Marie Bunales at (202) 272-0006 (voice) or by September 5, 2019.

For further details on the guidelines or the public hearing, contact Wendy Marshall at (202) 272-0043 (voice) or, or Mario Damiani at (202) 272-0050 (voice) or

Public Hearing on Advisory Guidelines for Aircraft Onboard Wheelchairs  
September 12, 2019, 9:30 - 4:00 (ET)
Remote attendance options will be posted at:
Access Board Conference Center
1331 F Street, NW, Suite 800
Washington, D.C.

Note: For the comfort of all participants and to promote a fragrance-free environment, attendees are requested not to use perfume, cologne, or other fragrances.

Read More at Article Source

August 19, 2019

Please share:

  • Are you a person with a developmental disability who needs support to communicate?

  • Are you a family member of a person who is non-speaking, minimally speaking, or unreliably speaking?

  • Are you a professional working with people with disabilities who need support to communicate?

  • This email is for you!

Disability Voices United and Disability Rights California are leading a project called the Communication Disabilities Access Network (CDAN). The project explores the various problems that people with developmental disabilities face when trying to access communication supports. We want to know the problems you are facing so that we can develop informational materials and advocacy efforts to break down the barriers.
For this survey, "communication supports" means all aspects of a communications system that helps a person with a disability communicate. This could include Augmentative and Alternative Communication (AAC) and assistive technologies (AT).
Communication supports could be equipment, such as a letterboard, iPad, smart phone, DynaVox, JAWS, and PECs. It also consists of services, such as sign language interpreters and communication partners. It can also include communication methods, such as gestures, facilitated communication, Rapid Prompting Method, sign language, braille, and others. This survey also covers the need for assessments, training, and ongoing supervision.

There are three versions of this survey: 
1) For people with developmental disabilities who need communication supports
2) For family members of a person with a developmental disability who need communication supports , and
3) For professionals (direct care providers, agency service providers, speech therapists, educators, etc.) who serve people with disabilities who need communication supports
Click on the correct link below to find the survey.




Feel free to forward this survey to others!

Disability Voices United is a statewide advocacy organization directed by and for individuals with developmental disabilities and family members.
We advocate for:

Choice and control over our lives,
Meaningful outcomes that matter to us, and
Systems that are equitable and accountable to us.


Read More at Article Source
NDLA Organizers Forum on 8/20: Fighting Racism & White Supremacy

August 15, 2019

Organizers Forum: Fighting Racism & White Supremacy

Tuesday, August 20, 2019
1:00-2:00 p.m. Eastern; 12:00-1:00 Central; 11:00-12:00 Mountain; 10:00-11:00 Pacific
Video link:
Call-in: 1-929-205-6099, Meeting ID 158 367 875#
Or find your local number:

As we hit 400 years since the beginning of slavery in the U.S., hundreds of Latinx immigrants are forced into camps, and the President himself encourages racism and violence, let's talk about how we in disability communities can take action. What work needs to be done within the disability rights movement, and how can we act in solidarity with immigrant rights groups and others? More conversations like this are happening in disability spaces and let's use this call as an opportunity to keep learning and growing.  

We'll be on video! Click the Zoom link above and turn on your webcam, or you can just call in from your phone. Unfortunately we will not have the online conference line available as in prior months. Please test your webcam and speakers before the call.

Speakers to be announced.

Accommodations & CART: 

  • The call will have real-time captioning (CART) at: No username and password needed, when you log on at the time of the call.

  • To ask questions via CART: Sign-in to the chat function on the right side of the transcript and type your question. One of the call facilitators will read questions posted there. You can also type questions through the Zoom video portal.

  • Because we want to maximize the generously donated CART services, we will begin the call promptly at 1:00 p.m. and end the call promptly at 2:00 p.m. Eastern.

  • Thank you to the National Disability Leadership Alliance for sponsoring the captioning of this call. Thank you to Senior and Disability Action for providing the video conference service.

  • If you need additional accommodations to participate in the call, please let us know as soon as possible. 

Mark your calendars! The Organizer's Forum has a call on the 3rd Tuesday of each month, 1:00-2:00 p.m. Eastern. 

The Organizing Workgroup of the National Disability Leadership Alliance hosts these calls the third Tuesday of every month as a resource for disability organizers, in an effort toward building the organizing capacity of the disability community across the country. They generally follow the format of a Welcome followed by 2-3 experts in a given area speaking for a few minutes on their experiences, advice and challenges. The calls include a 20-30 minute question and answer period. 

Please share widely! 

Read More at Article Source
Disability Leadership Needed on Governor's Taskforce Against Gun Violence

August 12, 2019

Last week, Governor Newsom announced that, in light of the mass shootings, he will expand an existing task force to focus more on gun violence, white supremacy, etc. He specifically mentioned it will include civil rights leaders.

California Foundation for Independent Living Centers (CFILC) is offering to provide letters of support for people with disabilities interested in applying.  The details of this task force are still being determined but if you are interested and want support, please contact CFILC’s Disability Organizing Network here. 

To inquire directly with the Governor’s Appointments Unit, you can just call  916-445-4541 and inquire about “the expanded task force that he announced at the media event on August 5.”  There may be no need for a state application form and just a letter and resume may be sufficient. Also, stay up-to-date by  regularly checking the Governor’s website (

Read More at Article Source
Let our mourning turn into action.

August 12, 2019

YO! Disabled & Proud and the Disability Organizing Network express our deepest sympathy and solidarity with those in mourning from the most recent mass shootings. 

While this is a response to the lives lost and forever altered during the recent mass shootings in Gilroy, CA, El Paso, TX, and Dayton,OH, we also know that there are thousands of people, disproportionately Black & Brown people with disabilities, who are continuously murdered and traumatized by gun violence every year. 

Too often gun violence and, specifically, mass shootings, are blamed on mental illness, especially when the individual behind the trigger is a white male. This is not a mental health/illness issue, but an issue rooted in increased gun access and xenophobia, racism and ableism. 

There is great strength and power within the voices of our community- from youth to older adults. So, no matter what your political views may be, let’s hold ourselves and our communities accountable to shaping public understanding of Disability, including mental health/illness and the issues impacting us. 




Mental illness/mental health disabilities should not be used as excuses or reasons for increased gun violence.  In fact, people with disabilities, including those with mental health disabilities, are more likely to be the victims and survivors of gun violence, rather than being the perpetrators. 

Here are important articles to read and share in hopes that they will help shape your conversations regarding gun violence, disability, and white supremacy. 

Special thanks to Alice Wong for making sure that we all have the resources and knowledge we need to shape public awareness and advance justice for our communities. Learn more about Alice Wong’s Disability Visibility Project and ways to support her.

Read More at Article Source
Make CA power shut-offs safe for people with disabilities!

August 8, 2019

Make California power shut-offs safe for people with disabilities!
Deadline: August 14

Let’s make sure that power shutoffs are safe for us! 
The California Senate Subcommittee on Gas, Electric, and Transportation Safety will be hosting an informational hearing on public safety power shutoffs (PSPS) on Wednesday, August 14, 2019, in State Capitol Room 3191 at 10am. 
As part of the hearing process, the Subcommittee will accept written public comments. Let's educate the legislature. 

How to make comments:

Your comments must be received by the date of the hearing, August 14. Input should be addressed to the Chair of the Subcommittee—Senator Jerry Hill, or Chair of the Standing Committee—Senator Ben Hueso.  
Input can be mailed to Senator Hill’s office at the State Capitol, Room 5035, or the Senate Energy’s Office at the State Capitol, Room 4035.
OR it can be e-mailed to Senator Hill’s office at
Please let your voice be heard!
The power shutoffs endanger people who rely on power wheelchairs, elevators to exit and enter their buildings, and medical equipment such as ventilators, dialysis, oxygen, and filters. Some people need power 24/7 just to breathe.The legislature must understand these issues and must actively address the concerns of the Disability and Aging communities across California. 

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Information Sharing: PG&E Wildfire Safety Informational Webinar

July 13, 2019

PG&E Wildfire Safety Informational Webinar
Monday, July 22, 2019
6 to 7:30 p.m.
Access by clicking this link*:
PG&E is conducting a series of regional in-person open houses across our service area. A schedule of open house and webinar events is available at Please feel free to reach out to PG&E  directly if you have any questions or need additional information. Thank you for your ongoing coordination and support around our wildfire safety efforts.

Topics will include:
Expansion of the Public Safety Power Shutoff program
Accelerated safety inspections of electric infrastructure
Enhanced vegetation management around power lines
Hardening the electric system for the future by replacing equipment and installing covered power lines and stronger and more resilient poles 

*Event Notes
Please note that for optimal viewing, it is best not to use VPN, but instead to connect directly to the Internet.
Please stop your pop-up blockers in order to view the content in its entirety.

This event is being streamed. It is recommended that you listen via your computer speakers. An additional option for audio listening in to dial in:

Toll-Free Attendee Dial In: 855-247-4312
Passcode: 8482036

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Let's Build Our Power - #DisabilityVoteCA

July 8, 2019

Are you an independent living center, disability organization, service provider, community group, activist, or artist collective?

The Disability Organizing Network joins national REV UP to celebrate the nationwide effort to increase and promote the collective power of the Disability Vote!

We invite YOU to join us! 

The Disability voting bloc includes more than just eligible voters who have disabilities; it also includes our family members, caregivers, and allies!

We are the #DisabilityVoteCA! 

Join us to amplify your work and the work of local organizations, groups, and leaders that increase voter accessibility, registration and participation! This is just the beginning of a larger community organizing campaign that will with propel us for what is ahead: the 2020 Census and upcoming elections.

Learn about ways to get involved
Sign up as a partner

Have questions or want to learn more? Contact Allie Cannington at, voice/text (916) 606 5300 

*National Disability Voter Registration Week is an annual effort coordinated by the REV UP Campaign; it is a nonpartisan initiative under American Association of People with Disabilities (AAPD). It coordinates national, state, and local disability organizations to increase the political participation of the disability community while also engaging candidates and the media on disability issues. REV UP stands for Register! Educate! Vote! Use your Power!*

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Celebrate National Disability Voter Registration Week 2019 with California's Disability Organizing Network

June 26, 2019

Disability Organizing Network joins REVUP in celebrating National Disability Voter Registration Week by launching a non-partisan, statewide, community organizing effort to highlight organizations and groups that increase voter accessibility, registration, and engagement. We are using the hashtag #DisabilityVoteCA!  

What Is The Goal? 

To organize, highlight, and amplify the collective power of Californians with Disabilities and our vote while joining the national efforts of REVUP and National Disability Voter Registration Week to ultimately increase voter turnout. 

When Is National Disability Voter Registration Week? July 15th-19th, 2019 

Where Are We Celebrating? Online and in our communities. Partners can join our social media campaign #DisabilityVoteCA as well as hosting local events, registration drives, community meetings and more. 

Who Can Participate? Everyone. It’s not just for independent Living Centers, disability organizations, service providers, community groups, activist or/and artist collectives. We invite anyone and everyone who wants to increase voter turnout to participate! 

Logos for California Foundation for Independent Living Centers, Disability Organizing Network, and RevUp.

Amplify your advocacy! Learn from and connect with other advocates across the state. This  will help pave the way for what is ahead: the 2020 Census and upcoming elections. Sign Up As A Partner

Ways To Participate As A Partner: 
  • SOCIAL MEDIA: Spotlight local leaders (Individuals and Organizations) 

    • Be sure to use the hashtag #DisabilityVoteCA 

  • IN PERSON: Host a local meeting, event, training, or registration drive. 

    • Take photos and capture stories! Share via on social media with #DisabilityVoteCA or email the photos and stories to the Disability Organizing Network: <> 

California Partner Guide (Docx).

What the Disability Organizing Network Provides: 

  • An easy guide that includes social media spotlight ideas, sample activities, and resources. 

  • Accessible social media materials: graphics and sample language 

  • An exclusive technical support session and one-on-one support available from July 8th-12th, 2019. 

  • Increased visibility for your organization and opportunity to build new partnerships. 

Sign Up As A Partner:  

Key Dates: 

  • July 5th, 2019: Deadline to complete the Disability Organizing Network Partner Join Form  

  • July 9th from 1-2PM: Partner Support Session (The session is free, but only for those who register as partner organizations.) 

  • July 8th-12th, 2019: One-on-one support available  

  • July 15th-19th, 2019: National Voter Registration Week #DisabilityVoteCA  

About REVUP - REVUP stands for Register! Educate! Vote! Use your Power!  launched by the American Association of People with Disabilities (AAPD) in 2016. It is a nonpartisan initiative that coordinates with national, state, and local disability organizations to increase the political participation of the disability community while also engaging candidates and the media on disability issues. The Campaign focuses on voter registration, education, access, and engagement. 

Click here to learn more about the Disability Organizing Network.  

Gratitude and credit to the first official use of #DisabilityVoteCA during the 2018 launch of from The Arc of CaliforniaCalifornia State Council on Developmental Disabilities, and Disability Rights California.  

For more information and/or any questions, contact Allie Cannington (916) 606-5300 or email

Resources for Social Media

#DisabilityVoteCA Social Media Guide (Docx)

1) Change your social media profile photo to include #DisabilityVoteCA: Twitter | Facebook.

Series of 3 photos. Closeup photo of a young, white woman with blonde hair smiling slightly. Plus sign. Image of a yellow and blue circle with text. Equals sign. Image of the original photo with the yellow and blue circle on top.

2) Graphics for posts (Right click and select "Save as...")

Photo of people standing in line holding small cards that read,

Photo of people standing in line holding small cards that read,

10 More Days to Speak Up for Equal Pay for People w/ Disabilities

June 11, 2019

Disability Organizers, Advocates and Allies,
we have until June 21st to speak up for equal pay!

For the next two weeks, we have an opportunity to fight back against subminimum wage. The Department of Labor is seeking public comments on section 14(c), the outdated system companies and providers use to segregate disabled workers while paying us less than minimum wage—sometimes less than a dollar per hour. The sheltered workshop industry will be flooding the comments, trying to drown out the voices of people with disabilities who want real work for real pay. Help us make sure our community is heard by submitting a comment before June 21st. (the date was extended)

Anyone can submit a comment, including employers, disabled people, and our family members and friends. Never written a comment before? Here are some suggestions to get you started!

  • People with disabilities can write about how being paid a subminimum wage does or would impact your life. How does/would it impact your living situation, your finances, and how other people treat you? Why is it important to you go work in an integrated setting, instead of in a sheltered workshop or other segregated setting?

  • Employers can share how paying people with disabilities fair wages improved the way your businesses run. Talk about why it is important to you that all of your employees are paid a fair wage and work together in an integrated setting.

  • Friends and family can talk about how important it is to see disabled members of their communities working for an equal wage in an integrated setting. You can talk about how it makes you feel to see people in your community mistreated.

Equal pay is a civil right, and decisions about our rights shouldn’t be made without us. In the next two weeks, the Department of Labor needs to be hearing from people with disabilities and our allies every day. It’s time to leave subminimum wage behind, so please take a moment to write a comment, spread the word, and take a stand for equal pay!

Find out more great resources on how you can take action now at: 

#WorkWithUs #DisabilityOrganizing #DOnetwork

- Action Alert adopted from Autistic Self Advocacy Network -

Read More at Article Source
Social Media Training at Silence = Violence Network Meeting (6/14)

June 11, 2019

Join the Silence = Violence Coalition for its quarterly coalition meeting and training.
Photo of an elder white woman holding a smart phone and a Twitter sign.

This Friday features a Social Media training to gear up for World Elder Abuse Awareness Day (WEAAD) on June 15th.

WHERE: California Foundation for Independent Living Centers, 1000 G Street, Suite 100, Sacramento, CA 95814
WHEN: Friday, June 14, 2019 from 1:00 PM - 3:00 PM (Social Media presentation begins at 1:30 PM)
NOTE: Please bring a smartphone, laptop or tablet to participate. 
RSVP:To reserve a spot, please email:

The Zoom platform will have live captioning. 
Join Zoom Meeting by Web:
OR by Phone: (408) 638 0968
Meeting ID: 379 222 112

About the Silence = Violence Network
The Silence = Violence Network  is comprised of representatives from agencies serving people with disabilities and seniors with statewide outreach capabilities and seeks to increase public awareness and decrease the number of people with disabilities and elders who experience abuse. Network members engage their collective strength to tackle the victimization of elders and people with disabilities by sharing knowledge and creating realistic strategies and campaigns to prevent and reduce the number of abuse incidents.  
Follow S=V on Facebook, Twitter & Instagram

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Public Input Needed: Phase II Underway

June 10, 2019


EVV Phase II is underway and we need to continue to inform this process! 
The second public stakeholder meeting on the implementation of what is referred to as "EVV (Electronic Visit Verification) Phase II, impacting agencies who provide Medicaid funded home care type services and supports - including regional center funded services including Supported Living, and In-Home Respite, and certain services under the new Self Determination Program, is scheduled for:

WHEN: MONDAY June 17, 2019
TIME: 1:00 PM - 3:00 PM
WHO: DEPARTMENT OF HEALTH CARE SERVICES (with Department of Social Services, Department of Developmental Services and California Department of Aging) 

Attend in person: 
Department of Health Care Services (Annex building)
1700 K Street, First Floor Conference Room
Sacramento, CA 95811

Attend via phone: 

AGENDA RELEASED?: Not yet - will be posted likely the day before the meeting on the EVV website 


The following is listed on the Department of Health Care Services EVV Phase II webpage: "For individuals with disabilities, the Department [of Health Care Services] will provide assistive devices such as sign-language interpretation, real-time captioning, note takers, reading or writing assistance, and conversion of training or meeting materials into Braille, large print, audiocassette, or computer disk. To request suchservices or copies in an alternate format, please write:
EVV Assistance
1515 K Street, Suite 400
Sacramento, CA 95899

Find out more on the EVV PHASE II WEBPAGE (on Department of Health Care Services website): 



  • California is implementating "EVV" in two phases, though those phases would be implementing concurrently (at the same time):

    • PHASE I is focused on the IHSS and Waiver Personal Care Services (WPCS) programs that currently use the Case Management Payrolling & Information Systems (CMIPS) and Electronic Timesheet and Telephonic Timesheet Systems. California plans to implement Phase I EVV over the course of the next two years or so and will seek a good faith exemption request to delay full implementation until January 1, 2021. The is planning on rolling out EVV Phase I first in Los Angeles County (over a period of several months in different parts of that county), beginning July 2019, and beginning in January 2020, rolling implementation in a series of counties as the state did with the then voluntary IHSS Electronic Time Sheet system several years ago.  

    • PHASE II is focused on identifying either an existing system(s) or a new system to implement EVV for non-CMIPS and agency personal care services, and self-directed and agency home health services. This includes regional center funded home care services that fall under the requirement of "EVV" including supported living services (SLS) and in-home respite services. The 2019-2020 State Budget - that will have a final vote later this week - includes significant one-time funding and some basic implementation steps for the State to move forward, working with stakeholders. The first EVV Phase II public stakeholder meeting was held on October 2, 2018. 

    • The following services funded under the following Medicaid (Medi-Cal) waivers in Calfornia will be required to fully comply with implementation of EVV Phase II:


        • DDS 1915(c) Waiver, Self-Directed and Agency Model 

        • DDS 1915(i) State Plan, Self-Directed and Agency Model  DDS 1915(c) Waiver Self-Determination Program, Self-Directed, and Agency Model


        • DHCS Waiver Personal Care Services, Agency Model

        • DHCS Home and Community-Based Alternative 1915(c) Waiver

        • DHCS Home Health Care Services


        • CDA Multipurpose Senior Services Program for 1915(c) and 1115 Waiver


        • CDPH 1915(c) AIDS Medi-Cal Waiver

The following, after working with stakeholders over numerous meetings and over the course of several months, are the guiding principles in how California will implement EVV (Electronic Visit Verification) for both Phase I and Phase II. These principles were included in the main state budget bill for 2018-2019 passed last June by the Legislature and signed into law by Governor Brown. These principles are supposed to be part of one of the 2019-2020 State budget trailer bills that will eventually go to the governor: 

  • California’s approach to EVV will be consistent with federal law. 

  • EVV will be developed through a collaborative stakeholder process

  • EVV will be developed in a manner that respects recipients and providers, does not alter their Olmstead protections and is minimally burdensome.

  • EVV will not change the number of service hours, nor how or where services are delivered

  • Use of geo-tracking or global positioning system capabilities (GPS) will not be required

  • Existing electronic and telephonic timesheet systems will be leveraged for EVV

  • Providers, recipients and other stakeholders will be trained on the use of the EVV system 

Read More at Article Source
Complete & Share TODAY: CA Disaster Prep Survey for Disability & Aging Communities

June 6, 2019

Photo of a burning building. Text: Access & Functional Needs Disaster Preparedness Survey. Feedback from California's Aging & Disability communities needed! CFILC & Disability Organizing Network logos.
Attention California advocates & community members:
As we support disaster preparedness and response across California for aging and disabilities communities, we know that there is limited data that illustrates our needs in preparation and during disasters. Please help us gather data that is for and by us – the disability and aging communities! The data collected will be ESSENTIAL to all areas of advocacy related to disaster preparedness and response for our community.
Please complete this survey and share WIDELY with your community via listservs, social media, in person etc: Access & Functional Needs Disaster Preparedness Survey! This survey is intended for Californians with disabilities of all ages.

If you need to complete the survey on paper, please contact Allie Cannington via email:

* * * The survey closes this Friday 6/7 by 5PM! * * *

Please share our message via social media, too. Links to posts: Facebook, Twitter, Instagram, LinkedIn

Read More at Article Source

Welcome to the Disability Organizing Network (DOnetwork) website! The DOnetwork calls to action the California Disability Communities and allies, through community organizing, advocacy, education, leadership development and coalition building to effect systems change in local, state and national issues.

The CFILC Disability Organizing Network is a statewide disability advocacy network of 28 Independent Living Centers and the communities they serve. In each center there is a full time staff person devoted to increasing civic participation through community organizing, education and advocacy around issues that affect the Disability Communities.