News & Topics in Our Community
Information Sharing: PG&E Wildfire Safety Informational Webinar
July 13, 2019
PG&E Wildfire Safety Informational Webinar
Monday, July 22, 2019
6 to 7:30 p.m.
Access by clicking this link*: https://engage.vevent.com/rt/pacificgasandelectriccompany~071719
PG&E is conducting a series of regional in-person open houses across our service area. A schedule of open house and webinar events is available at pge.com/wildfiresafety. Please feel free to reach out to PG&E directly if you have any questions or need additional information. Thank you for your ongoing coordination and support around our wildfire safety efforts.
Topics will include:
Expansion of the Public Safety Power Shutoff program
Accelerated safety inspections of electric infrastructure
Enhanced vegetation management around power lines
Hardening the electric system for the future by replacing equipment and installing covered power lines and stronger and more resilient poles
Please note that for optimal viewing, it is best not to use VPN, but instead to connect directly to the Internet.
Please stop your pop-up blockers in order to view the content in its entirety.
This event is being streamed. It is recommended that you listen via your computer speakers. An additional option for audio listening in to dial in:
Toll-Free Attendee Dial In: 855-247-4312
Let's Build Our Power - #DisabilityVoteCA
July 8, 2019
Are you an independent living center, disability organization, service provider, community group, activist, or artist collective?
The Disability Organizing Network joins national REV UP to celebrate the nationwide effort to increase and promote the collective power of the Disability Vote!
We invite YOU to join us!
The Disability voting bloc includes more than just eligible voters who have disabilities; it also includes our family members, caregivers, and allies!
We are the #DisabilityVoteCA!
Join us to amplify your work and the work of local organizations, groups, and leaders that increase voter accessibility, registration and participation! This is just the beginning of a larger community organizing campaign that will with propel us for what is ahead: the 2020 Census and upcoming elections.
Learn about ways to get involved
Sign up as a partner
Have questions or want to learn more? Contact Allie Cannington at email@example.com, voice/text (916) 606 5300
*National Disability Voter Registration Week is an annual effort coordinated by the REV UP Campaign; it is a nonpartisan initiative under American Association of People with Disabilities (AAPD). It coordinates national, state, and local disability organizations to increase the political participation of the disability community while also engaging candidates and the media on disability issues. REV UP stands for Register! Educate! Vote! Use your Power!*
Celebrate National Disability Voter Registration Week 2019 with California's Disability Organizing Network
June 26, 2019
Disability Organizing Network joins REVUP in celebrating National Disability Voter Registration Week by launching a non-partisan, statewide, community organizing effort to highlight organizations and groups that increase voter accessibility, registration, and engagement. We are using the hashtag #DisabilityVoteCA!
What Is The Goal?
To organize, highlight, and amplify the collective power of Californians with Disabilities and our vote while joining the national efforts of REVUP and National Disability Voter Registration Week to ultimately increase voter turnout.
When Is National Disability Voter Registration Week? July 15th-19th, 2019
Where Are We Celebrating? Online and in our communities. Partners can join our social media campaign #DisabilityVoteCA as well as hosting local events, registration drives, community meetings and more.
Who Can Participate? Everyone. It’s not just for independent Living Centers, disability organizations, service providers, community groups, activist or/and artist collectives. We invite anyone and everyone who wants to increase voter turnout to participate!
Amplify your advocacy! Learn from and connect with other advocates across the state. This will help pave the way for what is ahead: the 2020 Census and upcoming elections. Sign Up As A Partner.
Ways To Participate As A Partner:
- SOCIAL MEDIA: Spotlight local leaders (Individuals and Organizations)
- Be sure to use the hashtag #DisabilityVoteCA
- IN PERSON: Host a local meeting, event, training, or registration drive.
- Take photos and capture stories! Share via on social media with #DisabilityVoteCA or email the photos and stories to the Disability Organizing Network: <firstname.lastname@example.org>
What the Disability Organizing Network Provides:
- An easy guide that includes social media spotlight ideas, sample activities, and resources.
- Accessible social media materials: graphics and sample language
- An exclusive technical support session and one-on-one support available from July 8th-12th, 2019.
- Increased visibility for your organization and opportunity to build new partnerships.
Sign Up As A Partner: https://www.surveymonkey.com/r/2019disabilityvoteca
- July 5th, 2019: Deadline to complete the Disability Organizing Network Partner Join Form
- July 9th from 1-2PM: Partner Support Session (The session is free, but only for those who register as partner organizations.)
- July 8th-12th, 2019: One-on-one support available
- July 15th-19th, 2019: National Voter Registration Week #DisabilityVoteCA
About REVUP - REVUP stands for Register! Educate! Vote! Use your Power! launched by the American Association of People with Disabilities (AAPD) in 2016. It is a nonpartisan initiative that coordinates with national, state, and local disability organizations to increase the political participation of the disability community while also engaging candidates and the media on disability issues. The Campaign focuses on voter registration, education, access, and engagement.
Click here to learn more about the Disability Organizing Network.
Gratitude and credit to the first official use of #DisabilityVoteCA during the 2018 launch of www.disabilityvoteca.org from The Arc of California, California State Council on Developmental Disabilities, and Disability Rights California.
For more information and/or any questions, contact Allie Cannington (916) 606-5300 or email email@example.com.
#DisabilityVoteCA Social Media Guide (Docx)
1) Change your social media profile photo to include #DisabilityVoteCA: Twitter | Facebook.
10 More Days to Speak Up for Equal Pay for People w/ Disabilities
June 11, 2019
Disability Organizers, Advocates and Allies,
we have until June 21st to speak up for equal pay!
For the next two weeks, we have an opportunity to fight back against subminimum wage. The Department of Labor is seeking public comments on section 14(c), the outdated system companies and providers use to segregate disabled workers while paying us less than minimum wage—sometimes less than a dollar per hour. The sheltered workshop industry will be flooding the comments, trying to drown out the voices of people with disabilities who want real work for real pay. Help us make sure our community is heard by submitting a comment before June 21st. (the date was extended)
Anyone can submit a comment, including employers, disabled people, and our family members and friends. Never written a comment before? Here are some suggestions to get you started!
- People with disabilities can write about how being paid a subminimum wage does or would impact your life. How does/would it impact your living situation, your finances, and how other people treat you? Why is it important to you go work in an integrated setting, instead of in a sheltered workshop or other segregated setting?
- Employers can share how paying people with disabilities fair wages improved the way your businesses run. Talk about why it is important to you that all of your employees are paid a fair wage and work together in an integrated setting.
- Friends and family can talk about how important it is to see disabled members of their communities working for an equal wage in an integrated setting. You can talk about how it makes you feel to see people in your community mistreated.
Equal pay is a civil right, and decisions about our rights shouldn’t be made without us. In the next two weeks, the Department of Labor needs to be hearing from people with disabilities and our allies every day. It’s time to leave subminimum wage behind, so please take a moment to write a comment, spread the word, and take a stand for equal pay!
Find out more great resources on how you can take action now at: https://autisticadvocacy.org/workwithus/
#WorkWithUs #DisabilityOrganizing #DOnetwork
- Action Alert adopted from Autistic Self Advocacy Network -
Social Media Training at Silence = Violence Network Meeting (6/14)
June 11, 2019
Join the Silence = Violence Coalition for its quarterly coalition meeting and training.
This Friday features a Social Media training to gear up for World Elder Abuse Awareness Day (WEAAD) on June 15th.
PARTICIPATE IN PERSON
WHERE: California Foundation for Independent Living Centers, 1000 G Street, Suite 100, Sacramento, CA 95814
WHEN: Friday, June 14, 2019 from 1:00 PM - 3:00 PM (Social Media presentation begins at 1:30 PM)
NOTE: Please bring a smartphone, laptop or tablet to participate.
RSVP:To reserve a spot, please email: firstname.lastname@example.org
The Zoom platform will have live captioning.
Join Zoom Meeting by Web: https://zoom.us/j/379222112
OR by Phone: (408) 638 0968
Meeting ID: 379 222 112
About the Silence = Violence Network
The Silence = Violence Network is comprised of representatives from agencies serving people with disabilities and seniors with statewide outreach capabilities and seeks to increase public awareness and decrease the number of people with disabilities and elders who experience abuse. Network members engage their collective strength to tackle the victimization of elders and people with disabilities by sharing knowledge and creating realistic strategies and campaigns to prevent and reduce the number of abuse incidents.
Follow S=V on Facebook, Twitter & Instagram
Public Input Needed: Phase II Underway
June 10, 2019
CALLING CALIFORNIA DISABILITY ORGANIZERS, ADVOCATES & ALLIES:
EVV Phase II is underway and we need to continue to inform this process!
The second public stakeholder meeting on the implementation of what is referred to as "EVV (Electronic Visit Verification) Phase II, impacting agencies who provide Medicaid funded home care type services and supports - including regional center funded services including Supported Living, and In-Home Respite, and certain services under the new Self Determination Program, is scheduled for:
WHEN: MONDAY June 17, 2019
TIME: 1:00 PM - 3:00 PM
WHO: DEPARTMENT OF HEALTH CARE SERVICES (with Department of Social Services, Department of Developmental Services and California Department of Aging)
Attend in person:
Department of Health Care Services (Annex building)
1700 K Street, First Floor Conference Room
Sacramento, CA 95811
Attend via phone:
CONFERENCE CALL LINE: 800-593-0582
CONFERENCE CALL PASSCODE: 6023673
TELEVISED/STREAMED LIVE: No
AGENDA RELEASED?: Not yet - will be posted likely the day before the meeting on the EVV website
PUBLIC COMMENTS TAKEN?: Yes
The following is listed on the Department of Health Care Services EVV Phase II webpage: "For individuals with disabilities, the Department [of Health Care Services] will provide assistive devices such as sign-language interpretation, real-time captioning, note takers, reading or writing assistance, and conversion of training or meeting materials into Braille, large print, audiocassette, or computer disk. To request suchservices or copies in an alternate format, please write:
1515 K Street, Suite 400
Sacramento, CA 95899
Find out more on the EVV PHASE II WEBPAGE (on Department of Health Care Services website): https://www.dhcs.ca.gov/provgovpart/Pages/EVVMeetings.aspx
IMPORTANT BACKGROUND INFORMATION:
HOW IS CALIFORNIA IMPLEMENTING EVV:
- California is implementating "EVV" in two phases, though those phases would be implementing concurrently (at the same time):
- PHASE I is focused on the IHSS and Waiver Personal Care Services (WPCS) programs that currently use the Case Management Payrolling & Information Systems (CMIPS) and Electronic Timesheet and Telephonic Timesheet Systems. California plans to implement Phase I EVV over the course of the next two years or so and will seek a good faith exemption request to delay full implementation until January 1, 2021. The is planning on rolling out EVV Phase I first in Los Angeles County (over a period of several months in different parts of that county), beginning July 2019, and beginning in January 2020, rolling implementation in a series of counties as the state did with the then voluntary IHSS Electronic Time Sheet system several years ago.
- PHASE II is focused on identifying either an existing system(s) or a new system to implement EVV for non-CMIPS and agency personal care services, and self-directed and agency home health services. This includes regional center funded home care services that fall under the requirement of "EVV" including supported living services (SLS) and in-home respite services. The 2019-2020 State Budget - that will have a final vote later this week - includes significant one-time funding and some basic implementation steps for the State to move forward, working with stakeholders. The first EVV Phase II public stakeholder meeting was held on October 2, 2018.
- The following services funded under the following Medicaid (Medi-Cal) waivers in Calfornia will be required to fully comply with implementation of EVV Phase II:
- DEPARTMENT OF DEVELOPMENTAL SERVICES (DDS)
- DDS 1915(c) Waiver, Self-Directed and Agency Model
- DDS 1915(i) State Plan, Self-Directed and Agency Model DDS 1915(c) Waiver Self-Determination Program, Self-Directed, and Agency Model
- DEPARTMENT OF HEALTH CARE SERVICES (DHCS)
- DHCS Waiver Personal Care Services, Agency Model
- DHCS Home and Community-Based Alternative 1915(c) Waiver
- DHCS Home Health Care Services
- CALIFORNIA DEPARTMENT OF AGING (CDA)
- CDA Multipurpose Senior Services Program for 1915(c) and 1115 Waiver
- CALIFORNIA DEPARTMENT OF PUBLIC HEALTH (CDPH)
- CDPH 1915(c) AIDS Medi-Cal Waiver
- DEPARTMENT OF DEVELOPMENTAL SERVICES (DDS)
CALIFORNIA'S GUIDING PRINCIPLES IN IMPLEMENTING EVV
The following, after working with stakeholders over numerous meetings and over the course of several months, are the guiding principles in how California will implement EVV (Electronic Visit Verification) for both Phase I and Phase II. These principles were included in the main state budget bill for 2018-2019 passed last June by the Legislature and signed into law by Governor Brown. These principles are supposed to be part of one of the 2019-2020 State budget trailer bills that will eventually go to the governor:
- California’s approach to EVV will be consistent with federal law.
- EVV will be developed through a collaborative stakeholder process
- EVV will be developed in a manner that respects recipients and providers, does not alter their Olmstead protections and is minimally burdensome.
- EVV will not change the number of service hours, nor how or where services are delivered
- Use of geo-tracking or global positioning system capabilities (GPS) will not be required
- Existing electronic and telephonic timesheet systems will be leveraged for EVV
- Providers, recipients and other stakeholders will be trained on the use of the EVV system
Complete & Share TODAY: CA Disaster Prep Survey for Disability & Aging Communities
June 6, 2019
Attention California advocates & community members:
As we support disaster preparedness and response across California for aging and disabilities communities, we know that there is limited data that illustrates our needs in preparation and during disasters. Please help us gather data that is for and by us – the disability and aging communities! The data collected will be ESSENTIAL to all areas of advocacy related to disaster preparedness and response for our community.
Please complete this survey and share WIDELY with your community via listservs, social media, in person etc: Access & Functional Needs Disaster Preparedness Survey! This survey is intended for Californians with disabilities of all ages.
If you need to complete the survey on paper, please contact Allie Cannington via email: email@example.com.
* * * The survey closes this Friday 6/7 by 5PM! * * *
Please share our message via social media, too. Links to posts: Facebook, Twitter, Instagram, LinkedIn
ACTION ALERT: Disaster Preparedness & Our Community's Needs
May 29, 2019
We, people with disabilities, are disproportionately left behind and have the highest rates of injury and death during and after disasters!
The California Public Utilities Commission (CPUC) approved utility de-energization programs, which are when an electric utility turns off the electricity to its utility grids in areas where there is low humidity, high temperature, and high wind. Utility de-energization events can be beneficial, because they can reduce the possibility of utility-caused wildfires. However, people with disabilities who depend on consistent electricity to charge mobility equipment or run life-supporting medical equipment, de-energization can be life threatening.
We, people with disabilities, know our needs and must be key partners in creating solutions so that all Californians can have equal protections at the risk of and during a disaster. So what can you, your peers and allies do?
- If you are a person with disabilities or a senior, please take a few minutes and complete this Access & Functional Needs Survey so that there can be more data to support this advocacy.
- Share your feedback, comments and ideas for solutions at This Thursday’s California Public Utilities Commission (CPUC) Meeting:
To listen by phone, dial 1-800-857-1917 and enter passcode 92105 or
access our website at http://www.cpuc.ca.gov
Provide public comment by phone, email, or
U.S. mail via our Public Advisor’s office:
Address: CPUC Public Advisor's Office,
505 Van Ness Ave.,
San Francisco, CA 94102
For your ADA reasonable accommodation requests to be able to testify at the public hearing on utility de-energization (shut-off), please directly contact:
Director, News & Outreach Office
California Public Utilities Commission
Office: (415) 703-2160
Action: Your Voice & Opinion Matters
May 8, 2019
The State Plan for Independent Living (SPIL) is a three-year plan based on community input and feedback. As a disability community member you are invited to share what you believe should be prioritized or continued to be prioritized in the SPIL.
The SPIL currently provides funding that allows Independent Living Centers across California to assist people with disabilities of all ages in transitioning out of institutions. Institutions can be nursing homes, skilled nursing facilities, hospitals, etc. The SPIL also provide funding for the Disability Organizing Network, which allow us to keep you informed, engaged and aware of opportunities that you may not otherwise hear about. The Disability Organizing Network also provides training, technical assistance and resources on all thing’s community organizing. These are two examples of what the SPIL supports. If you’d like to see these priorities continued or if you have other ideas on how the SPIL can support people with disabilities please participate in the SPIL meeting in-person or by phone.
Feel free to contact the State Independent Living Council office if you’d like to learn more, 1(866)866-7452.
Thursday, May 9, 2019
10:45 AM – 12PM
Public Hearing Regarding
State Plan for Independent Living (SPIL)
Attend in person:
Hilton Sacramento Arden West
2200 Harvard Street
Sacramento, CA 95815
Or Call In:
Public Teleconference Line: 1-866-718-9441
Participant Passcode: 4147933
Check out more info about the SILC & further details about tomorrow’s meeting, visit https://www.calsilc.ca.gov
Mark Your Calendar: Disability Action Coalition Policy Trainings
May 2, 2019
We are three weeks away from the first-ever Disability & Aging Capitol Action Day, co-hosted by the Disability Action Coalition (DAC) and the California Alliance for Retired Americans (CARA). This partnership with CARA has afforded us with rich opportunities to learn and strengthen our strategies of collaboration and advocacy.
Join these sessions to learn about the plans and logistics for our first-ever Disability & Aging Capitol Action Day on May 23rd in Sacramento:
Webinar I: Disability Action Coalition Policy Training
Take a deep dive into the Disability Action Coalition (DAC)'s Legislative Agenda.
When: May 13, 2019 - 2:00 PM Pacific Time (US and Canada)
To access the webinar, please visit: https://zoom.us/j/664460682
- Or iPhone one-tap: +14086380968,,664460682#
- Or Telephone: (408) 638 0968
Webinar ID: 664 460 682
Webinar II: DAC / CARA Joint Policy Training
Get details on the two bills that we will focus on during our legislative visits: SB 512(Pan) and AB 1434 (Kalra).
When: May 20, 2019 2:00 PM Pacific Time (US and Canada)
To access the webinar, please visit: https://zoom.us/j/384972947
- Or iPhone one-tap: +14086380968,,384972947#
- Or Telephone: (408) 638 0968 or +1 646 876 9923
Webinar ID: 384 972 947
DOnetwork Twitter Chat: Disability Advocacy & Our Public Officials
May 2, 2019
Join us to share and learn best practices regarding meetings with public officials for Disability Advocacy!
In partnership the Disability Organizing DOnetwork, California Disability Action Coalition - DAC, and the Disability Visibility Podcast Project® will host a Twitter chat on disability advocacy with public officials on Tuesday, May 7, 2019, 3-4 pm Pacific.
While all participants are welcome, we will focus on disability advocacy in California. We want to hear about your advocacy efforts and the tactics you use with your public officials at the local, state, and federal level.
How to participate and chat questions: https://disabilityvisibilityproject.com/2019/04/29/5-7-donetwork-twitter-chat-disability-advocacy-our-public-officials
CalFresh for Seniors and People with Disabilities
May 2, 2019
Beginning June 1, 2019, SSI/SSP recipients will be eligible for CalFresh (SSI/SSP benefits will NOT decrease as a result).
CalFresh rules include opportunities to maximize benefits and simplify the application process for people in specific situations. Below you’ll find an overview of CalFresh rules that apply to seniors and people with disabilities (including newly eligible SSI/SSP recipients) with specific examples that represent common situations.
SSI/SSP recipients currently living in households where other household members are receiving CalFresh will automatically be added as an additional recipient at the next recertification or semiannual report. If adding the SSI/SSP recipient would result in a reduction or total loss of CalFresh benefits (due to the increase in total household income from the SSI/SSP benefits), they will receive Supplemental Nutrition Benefits (SNB) or Transitional Nutrition Benefits (TNB). For more information about SNB and TNB, check the policy guidance at www.cdss.ca.gov/CalFreshSSI.
Webinar: Census 2020: Inclusion of People with Disabilities 4/30
April 25, 2019
Our Disability community must be counted in the Census 2020.
Join us TUESDAY 4/30 "Webinar: Census 2020: Inclusion of People with Disabilities"
1. To educate Census 2020 key stakeholders about the importance of outreach to people with disabilities and how to encourage their participation in Census 2020
2. To engage with disability advocates and leaders so that the CA Census outreach efforts are inclusive of people with disabilities
3. To inform the disability community about the importance of Census 2020
Live captioning will be available. Requests for accommodations for individuals with disabilities (sign-language interpreter, assistive listening device, Braille, or any other accommodation needed by an individual) should be made to the CA Census Office no later than five (5) working days prior to the day of the webinar.
Give $20 to support Disability Advocates in honor of Olmstead's 20 years
April 24, 2019
Twenty years ago, the landmark US Supreme Court Decision of Olmstead v. L.C., declared that unjustified segregation of people with disabilities is against the Americans with Disabilities Act (ADA). With the fierce leadership of Lois Curtis & Elaine Wilson, Olmstead paved the way for people with disabilities to have greater access to community integration, independence, and community living.
Help the Disability Action Coalition carry out the legacy of Olmstead by supporting advocates with disabilities to travel and mobilize for this year’s Disability & Aging Capitol Action Day.
FOR THE 20TH ANNIVERSARY OF OLMSTEAD & Share widely!
The Teresa Favuzzi Mobilization Fund also honors the legacy of Teresa Favuzzi, an Olmstead advocate and one of the founders of Disability Action Coalition and Disability Capitol Action Day. The fund covers travel costs for people with disabilities to participate, mobilize and show our collective power at our State Capitol.
For more information about this year’s program and events please visit the Disability Action Coalition website at www.DisabilityActionCoalition.org.
Test Uber's New Wheelchair Accessible Vehicles in Select Cities and Share Your Experiences with NCIL
April 23, 2019
Uber has been working with MV Transportation to expand access to wheelchair accessible vehicles (WAVs). These are now available in: New York City; Boston; Philadelphia; Washington, DC; Chicago; San Francisco; and Los Angeles. They have also developed a feedback form for riders’ experiences, which can be found at: t.uber.com/wavfeedback.
We would like to encourage those of you who are wheelchair users who are interested to try this service and send feedback us at firstname.lastname@example.org. We are very interested in hearing about anything you’d like to share with us regarding your experiences. Please note that the information shared with us may be shared with Uber, but we will not provide any identifying information.
Open this message in Word or plain text.
CalFresh expanding for seniors and people with disabilities receiving SSI
April 16, 2019
Due in part to advocacy from groups like Californians for SSI, the 2018-2019 state budget included a policy change allowing California seniors and people with disabilities who receive SSI to be eligible for CalFresh (SNAP) benefits starting June 1, 2019.
Access to federal SNAP nutrition assistance will increase food security for California’s low-income SSI seniors and people with disabilities, leading to fewer people being forced to choose between basics like food and medicine, and giving people more flexibility to direct money toward other needs such as finding and being able to afford housing. The expansion will be particularly important for seniors age 60 or older, who represent more than half of the over 1.2 million low-income Californians who receive SSI to help meet their basic needs.
Aging services providers can learn more details about this important and historic change in a fact sheet from Justice in Aging. The five-page fact sheet helps providers understand the details of the change in order to better support their clients. The fact sheet also includes information on CalFresh rules that will be particularly relevant for enrolling SSI seniors and people with disabilities this summer and beyond.
Read the fact sheet.
More info on CalFresh expansion in English and Spanish.
Are you ready? May 23rd - Disability & Aging Capitol Action Day
April 15, 2019
People with disabilities
People with chronic illness
People with mental health conditions
People with pre-existing conditions
Older adults and seniors
We are everywhere.
In your family, in your school, in your workplace, in your local corner store.
Yet, too often, our needs, our dreams and our lives are not given the dignity that we all are worthy of.
Let 2019 be the year when all Californians have a stake in advancing the civil rights, independence and freedom for people with disabilities and older adults.
Join Disability Action Coalition and the California Alliance for Retired Americans on Thursday, May 23, 2019 from 10am-3pm for the first-ever Disability & Aging Capitol Action Day in Downtown Sacramento. The day includes a resource fair, educational rally, unity march and legislative meetings.
Grounded in cross-generational solidarity, we are mobilizing to the capitol, exercising our power, and informing California’s elected officials about what matters most.
Click here to Volunteer
Click here to Sponsor
Register for the Resource Fair
Support the Teresa Favuzzi Mobilization Fund
YOUR STORY, YOUR VOICE: California Needs More Options
April 2, 2019
Are you or someone you know living with disabilities?
Are you or someone you know living with chronic illnesses?
Are you or someone you know living with a pre-existing condition?
If so, you most likely access or struggle to afford and access
LONG TERM SUPPORTS & SERVICES (LTSS) this means:
- Access to daily living support, such as bathing, dressing, eating, grocery shopping, medications, wound care, paying bills, transportation, etc.
- The ability to modify your home to be more physically accessible
- Having support to navigate what services exist
- Access to assistive technology, such as durable medical equipment, a cpap machine, text-to-voice technology, and more.
BUT, accessing what you need can be a challenge, especially:
- If you do not qualify for Medi-Cal and are unable to afford out of pocket services.
- If you had to spend all of your money and assets to qualify for Medi-Cal
- If you coordinate paid or unpaid caregivers and struggle to hire because of the care crisis
Do you resonate with any of these situations?
Do you believe that there must be more options available for long term supports and services (LTSS)?
We can only help to pave the way for more LTSS options through listening and honoring our stories - the stories of people with disabilities, of all ages!
Join an effort led by older adults, people with disabilities and homecare workers that seeks to create more options for Californians to live with dignity and access in their homes and communities. The California Aging and Disability Alliance is working to find a sustainable funding source to create a new program to help Californians pay for long-term supports and services (LTSS)/Long-term Care (LTC) as well as create hundreds of great homecare jobs. This program is being designed to support those seniors and people with disabilities who fall outside of IHSS, Regional Center and other public LTSS programs, and struggle to afford the supports they need to remain in their homes.
If you have a story to share and want to get involved in this work, we’d love to hear from you! Please email email@example.com or text/voice-call at (916) 606 5300.
The Right Straws Provide Access for People with Disabilities and Reduce Environmental Waste
February 11, 2019
(SACRAMENTO, CALIF.) – With support from Monterey Bay Aquarium and Central Coast Center for Independent Living, The California Foundation for Independent Living Centers (CFILC)’s program, the Disability Organizing (DO) Network conducted the nation’s first study on the Disability community’s experiences with alternative straws, especially non-plastic straws.
Local advocates conducted user experience tests across the state and discovered that people with disabilities who need straws for eating and/or drinking have nuanced and diverse needs.
The study found that best alternatives for people with disabilities are (1) bendable, compostable plastic straws and (2) BPA-free bendable straws– both types need to be at least 8.25 inches long.
“Having access to straws (historically plastic straws) allows people with disabilities can access independence, community integration and public life,” said Allie Cannington, Statewide Community Organizer at CFILC.
Although people with disabilities seek straws that are flexible, lightweight, durable for re-use and different temperatures, they want to find ways to reduce waste and conserve the environment.
“We’re grateful for the Disability community’s commitment to protecting our ocean and marine life from plastic pollution—in ways that work for them,” said Barbara Meister, public affairs director for the Monterey Bay Aquarium. “This report, and its findings, illustrate that all of us have a role to play in ocean conservation, and in ensuring access for all people. Through open dialogue and collaboration, we can advance both goals together.”
“We are stronger together,” said Cannington. Californians do not have to choose between providing access to people with disabilities and reducing harm to the environment.”
Find more details on the Statewide Alternative Straw Research and Report and tips on Bridging Disability Access & Environmental Conservation are available at the Disability Organizing website: www.DOnetwork.org
# # #
About the California Foundation for Independent Living Centers (CFILC)
The California Foundation for Independent Living Centers (CFILC) registered 501(c)(3) non-profit Corporation that increases access and equal opportunity for people with disabilities by building the capacity of Independent Living Centers throughout California. To learn more, please visit: cfilc.org
About the Disability Organizing (DO) Network
The Disability Organizing (DO) Network mobilizes California’s Disability community and allies to change systems for greater access, independence and equity for people with disabilities locally, statewide and nationally. The DOnetwork advances this work through community organizing, advocacy, education, leadership development and coalition building. The DOnetwork is a project of the California Foundation for Independent Living Centers, funded by the Department of rehabilitation and the State Independent Living Council’s State Plan for Independent Living.
To learn more, please visit: www.DOnetwork.org
FOR IMMEDIATE RELEASE, February 11, 2019
Contact: Kyla Aquino Irving, (916) 325-1690 Ext. 304
#DOnetwork Twitter Chat: Solidarity As Love (2/14)
January 29, 2019
#DONetwork Twitter Chat 3:00pm - 4:00pm (PST)
QUESTIONS FOR THE CHAT
Q2 It’s #ValentinesDay, what do you love about the disability community and other communities you are a part of? How does it feel when someone shows up or acts in solidarity with you? #DOnetwork
Q3 What does solidarity and love mean to you as a disabled person? How are they related? #DOnetwork
Q4 How can the Disability community in California (and beyond) improve the way it connects with and shows up for one another diverse Disabled ppl? #DOnetwork
Q5 How can the Disability community in California (and beyond) improve the way it connects with and shows up with different communities and movements? Why is this important? #DOnetwork
Q6 Where can the disability community show solidarity with other movements? How can we show up through our everyday actions and words? Please share some examples. #DOnetwork
Q7 Is access love? How can we expand the idea of access as a form of love instead of just a checklist, a ‘burden,’ or set of guidelines and laws? #DOnetwork
Q8 Show some love! Who do you want to shout-out? Feel free to name individuals, orgs, and groups! Tag them! #DOnetwork
ABOUT THE ORGANIZERS
The California Foundation for Independent Living Center (CFILC) facilitates the Disability Organizing (DO) Network, a statewide disability advocacy network of 28 Independent Living Centers and the communities they serve. In each center there is a full time staff person devoted to increasing civic participation through community organizing, education and advocacy around issues that affect the Disability Communities.
Mia Mingus is a writer, educator and community organizer for disability justice and transformative justice. She is a queer physically disabled korean transracial and transnational adoptee raised in the Caribbean. She works for community, interdependency and home for all of us, not just some of us, and longs for a world where disabled children can live free of violence, with dignity and love. As her work for liberation evolves and deepens, her roots remain firmly planted in ending sexual violence.
Read more about Mia and find her writings on her blog, Leaving Evidence.
The Disability Visibility Project® is a community partnership with StoryCorps and an online community dedicated to creating, sharing, and amplifying disability media and culture founded by Alice Wong. Check out the Disability Visibility podcast for episodes about disability issues and culture: https://disabilityvisibilityproject.com/podcast-2/
HOW TO PARTICIPATE
- Follow @DOnetworkorg and @DisVisibility for the latest information about the chat.
- At the time of the chat, click on the ‘Latest’ tab for the hashtag #DOnetwork. This will show you the questions and everyone’s responses in real time.
- Use the hashtag #DOnetwork when you tweet. For example: your tweet in response to question (Q1), should follow this format: “A1 [your message] #DOnetwork”
If you might be overwhelmed by the amount of tweets and only want to see the chat’s questions so you can respond to them, check @DisVisibility’s account.
- New to Twitter? Info on starting an account and how to use it.
- Helpful Guide for Twitter Chat Participation
- Helping Educate to Advance the Rights of the Deaf (HEARD)’s Captioned ASL explanation
- Pause the chat if tweets are coming too fast
#FreedomDay2019 - Join the Disability Organizing (DO) Network
January 9, 2019
The Disability Organizing (DO) Network is proud to partner with National ADAPT and National Council on Independent Living (NCIL) for #FreedomDay2019, a celebration of the reintroduction of the Disability Integration Act (DIA) into the 116th Congress on January 15, 2019 at 12PM PST. The Disability Organizing (DO) Network will be supporting local Disability groups to host their own Facebook watch parties and in person gatherings across California. If you are a California-based local independent living center, peer-run group, or a crew of Disabled friends and allies who want to educate one another and the wider community about the Disability Integration Act (DIA), there are many ways to get involved!
Learn more about how you and/or your organization can host a watch party or in person gathering by joining the Disability Organizing (DO) Network #FreedomDay2019 call on Thursday, January 10 from 3-4PM PST. The call will be captioned.
- Join Zoom Meeting - https://zoom.us/j/915215175 OR
- Call in w/ +1 669 900 6833 Meeting ID: 915 215 175
Need help or have questions? Please contact the Disability Organizing (DO) Network, Statewide Community Organizer – Allie Cannington at firstname.lastname@example.org or text/call 916.606.5300!
#FreedomDay2019 #DisabilityFreedom #DIAtoday #DOnetwork
FREE Webinar: Assistive Technology (AT) Dec 19
December 18, 2018
- Learn about how can tools and devices enhance your life and where to find those services.
When: Wednesday, December 19. 2018
Who should attend: Those new to disability, those who serve the disability community
Where: Online via Zoom Platform
- To attend, register at: http://abilitytools.org/training-events/training-registration.php
***Please forward this email to your network and whomever would benefit.***
If you need additional accommodation(s) to participate in an Ability Tools training or event, requests must be made ten business days prior to the training or event by emailing us at email@example.com or contacting 1-800-390-2699 or 1-800-900-0706 TTY.
CalABLE Goes Live December 18, 2018!
December 17, 2018
What is CalABLE?
CalABLE is a savings and investment plan offered by the state of California to individuals with disabilities. The CalABLE Program will officially launch on December 18, 2018. As of that date, CalABLE’s enrollment website at www.CalABLE.ca.gov will be accepting new enrollees. Instructions on how to enroll will also be easily located on the website.
Eligible individuals, family, friends and employers can contribute up to $15,000 a year without affecting the account beneficiary's public disability benefits. CalABLE account owners who work can contribute even more to their accounts. Best of all, earnings on qualified withdrawals from a CalABLE account are federal and California state tax-free.
- Earnings in a CalABLE account receive federal and California state tax-free treatment.
- Withdrawals for qualified expenses are also tax-free.
- Up to $15,000 a year can be deposited into a CalABLE account without affecting the beneficiary's public disability benefits.
- Account owners/beneficiaries who are employed can contribute additional amounts above the $15,000 annual limit. For example, in 2018, eligible working individuals living in the 48 contiguous United States can contribute an amount equal to their current year gross income up to an additional $12,060.
- If you receive SSI benefits, you can save as much as $100,000 in your account with no effect on federal and California state benefits.
- California residents with a CalABLE account are protected from both creditors and repayment of medical assistance. Medi-Cal is prohibited from filing a claim to recover any payments after a beneficiary has died, giving individuals the full opportunity to leave a legacy for loved ones. Families can transfer money from a 529 College Savings Plan to an ABLE account (provided the transfer does not exceed the $15,000 maximum annual contribution).
- An annual fee of $37 per year is deducted in monthly installments from each CalABLE account. There are also low fees on the underlying investment options plus a state administrative fee. Additional fees apply if you choose not to use certain online features, such as receiving paper statements. CalABLE is California's ABLE Plan, but any eligible individual in the U.S. may open a CalABLE account. Withdraw money when needed.
HOW TO ACCESS?
Just log into your account and request a withdrawal amount. The withdrawal can be sent to your bank electronically or you can request a paper check for a small fee.
WHO IS ELIGIBLE?
Individuals with a disability that occurred before age 26 are eligible to open a CalABLE account.
If you meet this age of onset requirement, and receive benefits under SSI (Supplemental Security Income) and/or SSDI (Social Security Disability Insurance), you are automatically eligible to open a CalABLE account.
If you are not a recipient of SSI and/or SSDI, but still meet the age of onset requirement, you could still be eligible if you meet Social Security’s definition and criteria regarding significant functional limitations and receive a letter of certification from a licensed physician.
While CalABLE is California’s ABLE Plan, any eligible individual in the country can open an account.
For more information, please visit: www.CalABLE.ca.gov
CFILC Statement on Restraints & Seclusion
December 12, 2018
It’s been nearly a week since news outlets began reporting on the devastating tragedy of a disabled student who lost his life while at school in El Dorado Hills, California. Restraining a human being, a student, to the point of death or for any reason is unacceptable. We, the California Foundation for Independent Living Centers (CFILC), are deeply saddened and dismayed to learn about the death of Max Benson, a student with autism from Guiding Hands School on November 28. The information circulating about the incident reminds us that our advocacy to end restraints and seclusion needs to be prioritized.
CFILC, a membership organization of 22 Independent Living Centers, we believe that all students should be provided with care, dignity and respect. Restraint and seclusion is not the answer. AB 2657 (Weber), sponsored by Disability Rights California (DRC) and passed by Governor Brown this year is another step towards ending such horrible practices. CFILC applauds DRC for it’s efforts and will continue to work towards eliminating restraints and seclusion to keep all students safe in school.
CFILC stands in solidarity with the Benson’s family, survivors of seclusion and restraint, and our larger disability rights community.
Celebrating Our Global Disability Community Today 🌎♿🙌
December 3, 2018
A message from CFILC Statewide Community Organizer Allie Cannington
I believe that one of the pervasive functions of ableism, the oppression against people with disabilities, is that is isolates us from each other.
International Day of People with Disabilities is a reminder that we are not alone and that we are connected; connected beyond bars, borders and oceans.
International Day of People with Disabilities is a reminder that we, Disabled people, are everywhere - on every continent, in every city, remote town and village – our people have and will continue to exist, persist and resist injustice.
International Day of People with Disabilities is a call to action that we, people with disabilities, can reach out, connect, and grow stronger together.
International Day of People with Disabilities is a honoring of the global independent living and disability rights movement.
The first official independent living center may have started in Berkeley, but there are now independent living centers across the world - from the Philippines, Malaysia, Myanmar, Thailand, Pakistan, Nepal, Cambodia, Taiwan, Mongolia, Korea, Japan, South Africa, the United Kingdom, Germany, Finland, Sweden, Norway, Canada, Mexico, Brazil, just to name a few.
Every disabled person, local disability community and independent living center has endless wisdom to share with one another.
One billion strong, we are here.
Personal Note: Thank you to all individuals who connected me to the larger global independent living and disability rights movements. I have learned some of my deepest lessons of disability rights, love and justice through connecting with disability activists beyond the US – from Syria, Australia and to Japan. This is not a complete list but I thank – Yoshiko and Justin Dart, Judy Heumann, Masami, Tommy, Japan Independent Living Center, Satio, Stella Young, The National Council on Independent Living (NCIL), YO! Disabled & Proud, Victor Pineda and all those who journeyed with me.